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We’re in Tokyo evening of 4 to 10 June inclusive. This is a bonus trip, md we’re going to do one day at each, dates are just a coincidence. Thoughts are, as we pretty much won’t be able to get Fantasy Springs access anyway is to go on Wed 5 June, or chance the opening of 6th? And one other...

Stretchy skin isn't always synonymous with hEDS. This may help: https://www.ehlers-danlos.com/2017-eds-classification-non-experts/hypermobile-ehlers-danlos-syndrome-clinical-description-natural-history/

Our daughter has hEDS and we’re just back. We hired her a wheelchair they was delivered to the hotel. As she is under 18 she couldn’t hire a scooter which would have been our preferred option otherwise.

We had the door with a fully accessible room/roll in shower (daughter is part-time wheelchair user and can't shower over bath most of the time.) With the curtain someone would be able to do their teeth whilst another was using the toilet whereas it's all in one so one person at a time only.

It was a transfer. I've seen it on other rides when we took my mother-in-law that somehow they knew to slow it back down, with a different cast member don't know if it was a mark or a flag or something.

When it was folded, which wasn't often, we used the normal line. Or I'd push her on and she would change to a normal seat and I'd fold it up then. I'd let the driver know this before they did everything. At the destination I could sometimes get her out without using the wheelchair so I'd let...

We just returned and the driver told us a limit of 2 wheelchairs on each boat. There wouldn't be room for more as there was a step down for most of the seating. Same would apply for ECVs. Having said that apart from us we saw no other wheelchair or ECV users on the boats on the few days we...

We're just home from 11 nights staying at POFQ. DD16 has hEDS and related issues and often uses a walking cane/stick or wheelchair depending on the day she is having. DH sometimes required an ECV from a recent knee injury. I preordered both the ECV and wheelchair from Buena Vista rentals...

We really enjoyed Turf Club - both the mains and dessert was brilliant, we didn't have a starter. We decided on it as we were unexpectedly at Disney Springs and couldn't get an ADR there, but Turf Club had a lot of availability so we walked around. We had a better dinner there than at...

My DD16 and her friend did everything on FP today in AK, plus two shows, sit down lunch at Rainforest Cafe, and multiple rides on EE and Dinosaur. We started with FPs for FOP, EE and Dinosaur and picked up the others along the way. Started at 9am and left after a light dinner at Flame Tree...

TLDR: According to POFQ, Non-US issued Amex cards will not reauthorise/add further $100 holds and stops at that amount - we're from Australia. Full story - checked in last week, left a $100 authorisation which showed on our Amex. We've had minimum reason to charge to the room, paying cash...

Here's a quick update and thoughts on last night - 21 May. We are 2A and DD16 who uses a wheelchair part time. We arrived around 5.30 using our normal ticket with FP for both Kali River Rapids and Safari, then dinner ADR at Yak and Yeti. We got of Yak and Yeti around 9.10pm. Intention...

16 May - we're a little slow moving around as DD16 is in a wheelchair. Here's our list. We went in a clockwise direction, about 1.5 times around... about 7.30pm - Splash Moutain FP BTMR 7DMT FP - Fireworks started whilst we were here. From here everything was a walk on unless notes...

We went on 17 May. We got one of everything completed that evening. DD16 is in a wheelchair and we're a little slower to get around. Arrived about 8.15pm, 50s Prime Time for Dinner. From 9.30pm Star Tours Tower of Terror Toy Story Mania Slinky Dog Dash Alien Swirling Saucers Rock N Roller...

I use the notepad in the room, write Thank You on it, and leave it with our tip on one of the pillows. Hard to miss.

In case anyone is unsure if they can fit - we're in POFQ at the moment, as I type in fact, 3 people. My husband has an ECV (no, he isn't obese or whatever shaming is cool right now, just injured) and a wheelchair for my daughter with a disability. Plus luggage etc. And we fit quite...

After you get off the boat there is a landing and a set of stairs to get up to the park entries and City Walk. It is that ramp that I'm referring too. I found the picture - it was on my daughter's phone.

We've just had 3 night and 2 days at Universal, staying at Portofino, Express Passes. I thought I'd provide a quick update on our experiences, pretty much all positive. My DD16 has hEDS with hypotonia uses a wheelchair and/or walking cane depending on the distance we need to travel. We had a...

We'll be the same, clearing customs at LAX (from Sydney) then bag drop just after customs for our next flight. We just follow the crowd to regular baggage claim and take them from there.

We have weekly physiotherapist massage sessions for DD16s legs and hips (she has Ehler-Danlos hypermobility type with hypotonia muscles) and I supplement massages in between when she’s had a really bad day or she has an extra session. It’s mainly to relax the muscles and her. She’ll be in a...