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New update on Natalie. She has a set of appointments setup for December. They have added an additional diagnosis of Postural orthostatic tachycardia syndrome (POTS). This explains the tachycardia events she was having. She finished school from home for the last school year. This year she is...

She is my love. When I was pregnant with my daughter, I was debating between two names - Nicole Gillian & Natalie Grace. I decided on Nicole Gillian. Later when my daughter was pregnant and we were at her ultrasound appointment, the tech asked if she had picked a name. She said she liked the...

We found out in December 2020 on their first visit to Shands, that referrals had been sent to them from the time she was two. Her doctor & insurance never told my daughter about these referrals. The doctors at Shands told her. I started having a twitch on my right eye in 1992. When we moved to...

It has been awhile since I have done an update. There have been a number of things that are being looked into. 1st - we were able to get blood drawn for the lab tests that Shand's needed. I took her in and between myself and the additional tech we were able to hold her to get them done. She...

We used to have problems, but with our new carrier they aren't as frequent. We would get mail for our house number but for a street three street over from us. As for packages, we don't seem to have problems. We got a package for a street that was no where near our house. The number was the same...

She has always hated having blood drawn. I have seen her try to climb a wall to get away from them when she was four. She hears the cart coming down the way in the Peds ER and she pushes the bed away from the wall and is down behind it. She is getting better. But there were times that it would...

Update on diagnosis, she has the following: Sjogren's syndrome with keratoconjunctivitis sicca, Feeding intolerance, Autoantibody titer positive, Hashimoto's thyroiditis, hypersomnia and Gastroparesis. She has been fighting a medical battle since the age of one and it is rapidly getting worse...

I put it in my Wish List on Shop Disney and will keep checking it. I wish they had a feature where they would notify you when it is back in stock. I just looked at eBay to see what the going rate was. There is no way I would pay what they are asking knowing the actual price of the item. I...

I bought the Main Attraction Tiki Room Minnie Plush & Pin when they were out. I just purchased the Mickey Main Attraction Tiki Room Plush & Pin. My daughter sent me a picture of the Enchanted Tiki Room Mickey & Jose Funko Pop set yesterday and I was deliberating whether to get it or not (trying...

I got all the skinny jokes, but my mom always said to me "at least you won't be fat when you are 40." I actually wasn't. I only gained 27lbs when I was pregnant and was back in my jeans in 10 days. Did some amateur modeling in my mid twenties and one time I took my 18 month old with me and a...

Have a look at the trailer. You will see one scene where it shows her.

Ian to Owen "You made a promise to a dinosaur?" :D

Same here. Better hold a big rock or you will blow away. Add in my maiden name and it didn't help. Later got asked if I had anorexia.

I had watched one or two episodes and then didn't go back to it. I have started watching again and the time jumps are confusing. Slowly getting the gist of the story line, but It does make it hard. Glad I am not the only one that had this problem.

My DD & GDD went to Pensacola today for a cardiac appointment. Here is the summary of that visit: "1,824 days is the number we were hoping for today but it's not the number we got instead it was...273 days which is 9 months. We saw the cardiologist today and we were hoping to be on a 5 year...

Video chatted earlier and so far they are having a blast. My granddaughter loves rollercoasters. My daughter will do some, but is not too thrilled with some. Natalie LOVED Rock 'n Rollercoaster! You can tell she is laughing in the picture, while my daughter is screaming. 😂 They were going to...

Natalie & my daughter are back down in Gainesville for more tests. This afternoon she had a full MRI & CT. They were able to do it today instead of squeezing it in between appointments tomorrow. Day full of appointments tomorrow and a few on Tuesday. Then they are headed to Disney for a couple...

My granddaughter has some appointments this week. My husband & I just returned from DC after attending my parents inurnment ceremony at Arlington National Cemetery. My DD & GDD picked us up from the airport yesterday and then left to go to Orlando that afternoon. My DD said they kept getting...

I am playing but not collecting as many right now. My main ones are Aura, Collect Selects, Keyhole and a couple of others.

Still have the new Preston & Child "Bloodless" to read. I read the new Matthew Reilly book and now waiting to receive the last in the Jack West, Jr. series. The Matthew Reilly Official Fan Club page had an interview with Matthew Reilly and he was the one that okay'd us making the page...