Ever feel like this can't be happening to us?

[Michigan]

In Feb I took my youngest DD (Michaela) to the emergency room with 104 temp that turned out to be a bladder infections but her bp was 131/121 and 2 days after that it was 142/92 so we met with nephrology (sp) and she was put on medication. I have to take her bp everyday now. More test have showed that her right kidney is shrinking and has a lot of scar tissue in it. She has another appointment in July and more tests before the appointment to verify that if they remove the right kidney the left will work ok by itself.

Last week she hit an uneven spot on one of the neighbors sidewalk flipped her wheelchair over and has a minor closed head injury that has caused her right eye to cross and today got fitted for glasses.

I know lots of people live fine with only 1 kidney and I also know that a 3 year old can't stay on bp meds for the rest of her life but boy it scares me.

Sorry this was so long.

 

[Michelle NY]

I am so sorry that your Daughter is having such a tuff time. If it is any help , My Angelina had her right Kidney removed at 7 months old. I know how hard it is to know that a vital organ needs to be removed. It always seems like our special kids have one thing ontop of the other. I am sending so pixie Dust you way.
Michelle NY

 

[Wheelsie]

Oh Michie...is there anything that you need? please email me (and I will answer) if there is...give that baby my best and tell her she has all of us pulling for her..

Tell her I wanna count w her in Spanish to 100 next time I see her *hugs for all of you*

I give you all my PD and good thoughts my friend!!

Wheelsie Co-Moderator of disABILITIES
and
DisneyTips
wheelsie@mail.wdwinfo.com

 

[teri]

I am very sorry to hear of all this! Our prayers are with you. Take good care of yourself though all of this - if I were in your place I think I would feel like I were about to burst. Wish I could be there to give you a big hug!

Pixie Dust is coming your way.

DIS disABILITIES Discussion Board FAQ under construction!
"My brain takes a vacation just to give my heart more room..."
teri@iluvdisney.com

 

[SueM in MN]

I'm sending pixie dust too.
And if it's any help, my mom has lived her whole life with only one kidney - and doing very well too. She found out she only had one when she got a bad bladder infection when she was about 40. They did some tests and were real surprised to only find one kidney!
So, hopefully, once everything setles down your DD will live a long and happy life with her one kidney.

SueM in MN
Co-Moderator of disABILITIES

 

[SueOKW]

I feel like that quite often... here's a big
{{{{{{{{{{{{HUG}}}}}}}}}}}

Hope today you are feeling more optomistic and back on track.
Sue

<img width="200" src="http://www.wdwinfo.com/sites/disstuff/cleveland.gif">

 

[Michigan]

Thanks everyone. I'll be glad when it's over, but for now the waiting until July to be sure the left kidney is working well enough to support the loss of the right one seems like it's forever.