feeling defeated



lovemygoofy

DIS Veteran
Joined
Jun 9, 2004
With all that is going on, I wanted you to know I am still holding you and your family up in my prayers. I admire your caring and tenacity and the mama bear attitude. Your family is incredibly lucky to have you.
 
  • weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Hello, We are floating along! So far so good. We are self isolated my daughter and I by choice! We are terrified and sooooo worried about her! Her bloodwork this week is stable and the wound is about the same. We continue to have daily nursing visits to keep us home <3 the surgeon is calling me Tues for a follow up. I hope each of you are doing well and staying safe!
     

    RogueX

    Mouseketeer
    Joined
    Aug 21, 2019
    Hello, We are floating along! So far so good. We are self isolated my daughter and I by choice! We are terrified and sooooo worried about her! Her bloodwork this week is stable and the wound is about the same. We continue to have daily nursing visits to keep us home <3 the surgeon is calling me Tues for a follow up. I hope each of you are doing well and staying safe!
    I don't know how it is where you are, but the conditions in MA are starting to get to where people coming in from other states are to self quarantine. No school until early May, etc.

    Glad you are getting through this so far, so good.
     

    Dan Murphy

    We are family.
    Joined
    Apr 20, 2000
    I'm just seeing this for first time, weswife. :hug:s Your daughter, you and family have been through so much. She and all of you are in my prayers of healing. My best for her. :hug:s
     
  • weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Thanks for all of the replies. I live on the very east coast of Canada. Yes all non essential places are closed. All boarders to our province are closed. To go grocery shopping only 1 family member is permitted to shop and the store only lets a few people in at a time. You must follow the directions on the floor and social distance 6 feet apart. Our nursing visits are daily and may have to be reduced and we need a plan in place. Thankfully I am able to provide a lot of her care and will learn to do a sterile dressing change. Its scary for sure! I wish all of you health and safety during this difficult time.. hugs to all
     

    weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Today has been a difficult day. My DD labs are not the best and the worry comes back. The surgeon called me to talk and she asked a lot of questions. She said to reach out if we are concerned and she will make a plan to check her over. She said we need a plan in place if she becomes ill. She also reviewed the precautions we have in place and said they were great! She told me she is in a high risk category, which I knew. So, my mind took off and its been a sad day. We now only have nursing every 2nd day and I do her wound care the other day. I like to do it so I can get a good look at the ulcer/wound. We have nursing tomorrow. The other good part is it cuts down on the traffic in and out of my house, her exposure to people. Surgeon agreed to that. As of tonight my DD still looks well and has no fever! I am beyond thankful for this! I continue to pray and clean like a nut. ( Ah need a bit of humour) Her birthday is Mon so thats exciting!!!! Trying to put something special together might be difficult but in my heart I am so thankful she is here to celebrate <3 Thanks for letting me vent and not worry about judgement .. Stay well my friends <3
     

    mommasita

    DIS VETERAN
    Moderator
    Joined
    Aug 3, 2004
    It sounds like the medical team is very adept ! I’m glad to hear that, as well as less people coming and going 👍 It is wise to have a plan in place. Praying it is just “in case”.
    Wishing your daughter a very HAPPY BIRTHDAY! No matter how you celebrate, a May west with a candle, lol. It’s the Bday, and you are all together ❤💕
    i wish for healing and peace, my fellow Canadian . 🇨🇦🇨🇦
    Stay Safe
     

    ZTator

    Mouseketeer
    Joined
    Aug 16, 2018
    I am following along with your story. God bless your precious family. What a wonderful loving parent you are, may God richly bless you and keep your precious daughter and family safe. Hang in there, life doesn't have to be perfect to be good. Blessings and much love sent your way! :grouphug:
     
  • weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Thanks for the replies! We had another week of blood labs and they have improved so we are happy!!! We are also so very thankful that she has avoided the virus. Its a very scary time for all and pray for a vaccine . She celebrated her 27th b-day yesterday with a vamparina cake! No party but our hearts filled with joy watching her smile. Thanks for all the prayers we greatly appreciate it and we pray she wins this battle <3
     

    butterscotchcollins

    Drop Chicken
    Joined
    Jul 12, 2019
    I've been reading along and praying so hard for your daughter, you, and your family! You are one tough Mama and you are doing a great job taking care of her - hold on to that hope and know you have a lot of prayers and support from my little corner of the world.
     

    mommasita

    DIS VETERAN
    Moderator
    Joined
    Aug 3, 2004
    HAPPY Belated Birthday to your princess!!❤

    I am glad to hear the Positive lab results. Stay safe and stay well 🌈
     

    weswife

    DIS Veteran
    Joined
    Feb 15, 2009
    Another Monday has come and gone. I am happy to report my DD's blood labs are stable! She is feeling good and dreaming of Disney! We continue to pray she will be well enough to travel in Dec! I have been doing her wound care every 2nd day now for a few weeks and I can actually se an improvement! So far the infection has calmed down, we know its always there and will never truly leave. The specialist tells us she has septic arthritis so I am trying to learn more about that. I guess for us if there is a positive side to this virus ( which there really is not) I am still home able to care for her <3 We had to take her to the hospital as the nurses were. not able to access her port to obtain the blood sample. I was terrified! I had to include a pic of our visit. She was so scared of the virus she looked petrified, she was so good! I was surprised she understood the level of covid-19. I guess she is listening/watching. My family all works for a franchised restaurant, my DS starts back tomorrow as his 2nd year university is complete! They are now all required to wear masks at work plus gloves. I worry about their safety everyday <3

    I am not sure if you folks are aware of the massive shooting that took place in my province over the weekend. It has left our province shaken and in mourning. The shooter took 20 lives so far. He burned multiple homes and the RCMP are still investigating to determine how many lives are lost. We live about 30 mins from where this all happened. This is said to be the worst mass murder in Canada. My heart goes out to all the innocent lives lost. As the stories start to emerge in some ways we are all connected. I am so very thankful we are all safe and I send my deepest condolences to all the loved ones left here to mourn. We put out white and blue christmas lights out last night to represent #novascotiastrong Here is my house with the white and blue to support Nova Scotia and honour the lives lost for a senseless reason.

    Thanks again for letting me vent. It so helps my soul .. have a good day and stay safe/healthy my friends!
     

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    butterscotchcollins

    Drop Chicken
    Joined
    Jul 12, 2019
    Love hearing positive news from your family but so sorry it's coming in tandem with a national tragedy. It was shocking to hear the news coming out of Canada - praying for those affected. It can feel hard and scary and overwhelming when there is so much going wrong in the world around you, it's OK to focus on your little bubble for a while and celebrate the wins - your daughter's stable blood labs, her optimism and her dreams of Disney, and the other little things that bring you joy whether it's a cup of tea or a blooming tulip. Stay strong! I'll keep praying for you :)
     

    Dan Murphy

    We are family.
    Joined
    Apr 20, 2000
    Thanks for the update, weswife. In spite of all, it sounds like your daughter is coming along. And good she can be at home. :hug:'s

    So sorry to hear about the NS shootings. :( The lights on your home are great. Nova Scotia Strong. 🇨🇦
     

    mommasita

    DIS VETERAN
    Moderator
    Joined
    Aug 3, 2004
    Hi there, hugs and blessings to your family and daughter. Praying for your trip. 🙏

    Such a tragedy, all of Canada 🇨🇦 Is flying the flag at half mast in honor of the lost lives in this senseless tragedy. Nova Scotia, and the East coast is so special to me, and I pray so hard and have shed many tears for these families.
     





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