ocular migraines

[sara mom]

My 15 had sudden onset really blurry/ no vision one night- 12 hours in Emergency with eye doctor and no real reason. 2 eye specialists later and a neurologist he was diagnosed with ocular migraines. Started with vitamins to help. No help. He’s been on Verapamil that has helped. He still has some- stress induced usually but not always.

 

[sewmess]

I've been getting them off and on for about 20ish years (I'm mid 40s)
They seem to accompany hormonal swings or - and I just found this out - blood sugar swings.
I had one a couple of weeks ago, more annoying than anything else because I was trying to read a knitting pattern. My husband, who works in a medical adjacent field, gave me a pop-tart (about the only sweet thing we had in the house) and literally within 3 bites, the migraine was gone.

 

[RogueX]

In my early 40s and have been having basilar migraines since I was 18. Aura, decreased feeling in my head, nauseae and all of the other joys of migraines. I was told I was untreatable after seeing multiple neurologists in Boston. The longest continuous migraine lasted over 2 years. But there really are treatments that work (no, I'm not a pharmaceutical rep) . The headache specialist I was referred to started me immediately on Vitamin B2, explained that people with migraines need increased levels of Riboflavin (B2). He increased my Botox injections, adjusted other meds, etc. I saw some improvement, but none that lasted until I started the new injectable, Emgality. I had used Aimovig, but weird side effects, so that was stopped.

Long story short, there are treatments for migraines, unfortunately we as patients have to keep advocating for ourselves.

 

[bushdianee]

I have been getting them for years. My eye doctor said they are nothing to worry about. I get the squiggly line that starts in the corner of my left eye and slowly travels across my line of vision until it goes to the opposite corner of my right eye. Sometimes I get a dull headache after. I really can't focus enough to read during one and I don't like to drive during them. they last anywhere from a few minutes to a half hour. I'll go months without any then have a few close together.

 

[Chrisizzle]

I didn’t read all the posts so this may be a repeat.

It’s called a Scintillating Scotoma and my doctors weren’t much good in diagnosing it. I found out what it was after months of searching and just before I got to the specialist who could at least confirm it.

I’m glad my general physician erred on the side of caution but I was sent down the road of tests for TIAs (which are mini-strokes).

I’d get it after serious exertion and exercise. I described it as reverse tunnel vision since it got dark in the middle while my peripheral vision was fine.... plus the fun zigzag lines that added some excitement.

Now that I’m writing this, I realize I haven’t gotten this in years. I don’t know what has solved it. I have gotten better at managing my migraines (usually from dehydration) and I’ve also lost some weight.

https://en.m.wikipedia.org/wiki/Scintillating_scotoma

 

[Deb & Bill]

I have been getting them for years. My eye doctor said they are nothing to worry about. I get the squiggly line that starts in the corner of my left eye and slowly travels across my line of vision until it goes to the opposite corner of my right eye. Sometimes I get a dull headache after. I really can't focus enough to read during one and I don't like to drive during them. they last anywhere from a few minutes to a half hour. I'll go months without any then have a few close together.

Mine aren't even in my eyes. If I close my eyes I can still see the zigzag lines. So it must be in my brain. They start very small in the left side of my field of vision and grow bigger. Takes about 20 minutes.