Good Sunday Morning, DIS friends! I'm back with a Dom update! I went to see Dom yesterday, and gave him a much needed haircut. He's doing well, no medical issues recently, other than a little breakdown on his bottom due to not being placed appropriately in his chair last week by a staff member at his facility who didn't know what she was doing. It doesn't take long for a pressure ulcer to start forming. It's so important that people like Dom, who are immobile and can't reposition themselves, are taken care of by experienced staff. For the time being Dom is only allowed in his chair for about 3 hours per day, and he's being turned every 2 hours while in bed to facilitate healing of the skin breakdown.
Finally, Dom is going to be starting his hyberbaric oxygen chamber treatments next week, which will also help his skin to heal more quickly. He'll be going three times a week for the time being. Unfortunately, the treatment center where he was originally evaluated, in Cherry Hill, NJ, which is about a 20 minute drive from Dom's facility, didn't have an appropriate type chamber for him to use safely, so that delayed the start of the treatments. Dom will now be traveling to Langhorne, PA, which will be about a 45 minute drive if traffic isn't bad, for his treatments, where they have a full size chamber, and his mom can even go in it with him! Apparently, the Cherry Hill facility had a blow up type of chamber, and there was no way to get Dom safely into it. I don't understand why they didn't realize this before he went for his first treatment a few weeks ago. Such a waste of time and energy for Patty, the transport team, as well as Dom. Then Patty had to search for another treatment center, make an appointment, take Dom for another evaluation, and now, finally, he has his treatment schedule set up. HBOT has been shown in clinical data to help decrease inflammation and reintroduce oxygen and blood flow to affected areas, including affected regions in the brain. We're hopeful Dom will benefit from these treatments. Dom is going to need a lot of HBOT for a long time, so I'm sure there will be more fundraisers and benefits for him.
Patty is still waiting on the judge's decision regarding whether the insurance company will have to continue to pay for Dom's PT/OT. It seems like it's taking forever, but the longer it's delayed, the better it is for Dom. I know Patty is thinking about bringing him home if Dom loses his case. She's keeping all options open. Since Patty is a teacher's aide full time, she's had the summer off from school, and has been with Dom almost every single day. Her part time job is as a server for a country club, and she does that usually on the weekends. I really don't know how she does it all. She is the most positive, hopeful, cheerful person I've ever known. My brother, sadly, is still not doing well dealing with what has happened to Dom. He has only come back for a short visit once in the past 15 months. He was here in May of 2017, and then February of this year. When he's here, he stays with my son, and his visit is for about 5 days, and he sees Dom for a few hours each day. When he calls my son it is basically to say hi and talk about anything but Dom. It's tragic.
I found a very interesting article from the Journal of American Physicians and Surgeons, titled "Late Treatment of Severe Brain Injury with Hyperbaric Oxygenation". It shows case studies where it has worked for people like Dom, with a severe anoxic brain injury. Miracles do happen.
http://www.jpands.org/vol10no2/neubauer.pdf
Dom was super sleepy yesterday. He had been started on Ambien a few months ago in hopes it would "wake him up", as in rare cases it had the opposite effect of it's normal use on brain injury patients. When he was hospitalized for his kidney stones he had been taken off of it, and then recently started on it again. It seems like it's sedating him, as Patty said he's been more tired than usual, so she's asking for it to be discontinued, as we really didn't notice any difference in him after it was initially started.
My son, Joe, letting Dom listen to the theme music from Halo, Destiny & Star Wars, as well as showing him clips on YouTube, hoping to spark some kind of recognition/response.