triplefigs
<marquee><font color=009933>Triple Chick</marquee>
- Joined
- Oct 26, 2004
2 of my triplets have disabilities. My DD has hypotonic CP and Reflex Sympathetic Dystrophy in her right ankle. She developed RSD after breaking the growth plate last Spring. She is very floppy in her legs, falls a lot, etc. And if she's on her feet for a long time, her ankle locks up and is EXTREMELY painful. She cannot walk long distances or stand for long periods of time.
One of my DS has CP and has stamina issues. He also has ADHD, many medical issues that require lots of meds and daily shots, PVL, and SID. He is doing AWESOME in school this year in a regular classroom and is thriving. I'm praying this trip is going to be so wonderful for them all.
The kids Physical Therapist talked to me after their session today. She and our OT are very concerned about our trip to WDW next month and the kids stamina levels, sensory levels, meltdowns in large crowds. I explained to her about the GAC and that we'd be getting one on our first day. We also are planning to use the FastPass, go early, take long breaks, go at an easy pace, etc.
Do you all think that our strollers (we just have regular umbrellas as the kids are very thin) would work or should we rent the Disney ones? Which ones would be better used as a wheelchair for lines? One stroller is a single, and the other is a double umbrella. I know I just need to take the kids with me and explain their needs, not the diagnoses. Is there anything I might not have thought of? Any tips for loud noises, dark places, etc? I'm just trying to think of anything that might bother the kids or set them up for a problem/failure. I really want this to be a low-stress, high-fun trip!
Thanks for any tips. Can't believe we're finally getting close!
One of my DS has CP and has stamina issues. He also has ADHD, many medical issues that require lots of meds and daily shots, PVL, and SID. He is doing AWESOME in school this year in a regular classroom and is thriving. I'm praying this trip is going to be so wonderful for them all.
The kids Physical Therapist talked to me after their session today. She and our OT are very concerned about our trip to WDW next month and the kids stamina levels, sensory levels, meltdowns in large crowds. I explained to her about the GAC and that we'd be getting one on our first day. We also are planning to use the FastPass, go early, take long breaks, go at an easy pace, etc.
Do you all think that our strollers (we just have regular umbrellas as the kids are very thin) would work or should we rent the Disney ones? Which ones would be better used as a wheelchair for lines? One stroller is a single, and the other is a double umbrella. I know I just need to take the kids with me and explain their needs, not the diagnoses. Is there anything I might not have thought of? Any tips for loud noises, dark places, etc? I'm just trying to think of anything that might bother the kids or set them up for a problem/failure. I really want this to be a low-stress, high-fun trip!
Thanks for any tips. Can't believe we're finally getting close!