The THYROID Thread

Discussion in 'Coping and Compassion' started by Christine, Nov 11, 2006.

  1. Christine

    Christine Would love to be able to sit on

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    Good morning everyone, just checking in after a long while. Hope everyone is doing well. I haven't been up to much. Just trying to avoid the noise so I don't freak out about the flu epidemic (it's not working!!).

    Now that the holidays are over, I'm back to work and it was tough going in for 5 straight days. At least I had a three day weekend this week and am hoping for a snow/telework day on Wednesday.

    SingingMom, your trip sounds great. One of my coworkers went over the holidays. I think the week before Christmas he got a day or two in the upper 80s, but after that, the heat wave was over as it was for most of the East Coast. It has been colder than I remember for such a long period of time. I think I would have been bummed had a been in Florida (well, just a little bit anyway). If I went in the winter, I'd definitely be seeking some heat. The crowds would definitely have gotten to me. I'm tentatively looking at an early to mid-May trip. My son graduates college then and he doesn't start his job until August so it will be the first time that we can go when the "masses" aren't there. But it all depends on if he finds a summer job.

    Macraven, hope you are doing okay and your surgery went well.

    Everyone, keep healthy!!
     
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  2. Christine

    Christine Would love to be able to sit on

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    I think with all of the other stuff you have going on, especially with the steriods, it may be hard to "feel" any thyroid improvements if that makes sense?
     
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  4. Pacesetter

    Pacesetter Earning My Ears

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    sorry - wrong thread.
     
  5. bababear_50

    bababear_50 DIS Veteran

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    Hi Thyroid Thread friends.
    I have a question for you.
    History
    Hyperthyroidism Dx--ultrasound showed multiple nodules growing on the thyroid ---Sept 2002
    Treated with Radioactive Iodine--no longer have a thyroid
    I have been taking synthroid 100 mcg since RAI 2002

    In April 2017 my blood work showed Hypothyroidism.
    Doctor changed meds to 125 mcg Synthroid

    Now my blood work as of last week is showing Hyperthyroidism,,,,BUT
    I actually feel better than I've felt is a long time.
    We agreed to wait till first week of April and recheck blood THS
    She said we may need to do 125 mcg week days and 100 mcg weekend? Has anyone ever done this?
    My memories of Hyperthyroidism just don't match what I am feeling right now.
    Any thoughts or ideas ,discussion welcome.
    Thanks and
    Hugs Mel
     
  6. macraven

    macraven Proud Redhead Moderator

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    Welcome!


    All I can say is my endo has had me alternate two different doses

    Went that route for 3 months before I went on one dosage level for ongoing
     
  7. bababear_50

    bababear_50 DIS Veteran

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    Hi Hon
    Thanks for responding, I will give it a go for a few weeks and if I start to get too many problems I head back in to see her and request we start the alternating doses early.
    I am most worried about getting muscle weakness (bad memories of this from years ago) and dry skin--already have psoriasis and two types of eczema which is hard enough to treat in this darn Canadian weather we are having.
    I understand from previous posts that you are recovering from surgery and I hope all is well.
    Again thanks for taking the time to help and the welcome.
    Best Regards
    Mel
     
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  8. dosekies

    dosekies DIS Veteran

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    I'm getting a blood test done this weekend to check for hypothyroidism. Among other things, I have been ridiculously exhausted for the past year or so no matter how much sleep or caffeine I get and have gained a lot of weight over the last few years - 15 pounds even in just the last year even though I'm eating better and walking more. I in no way, shape, or form want to say I hope I have it, but I hope I get some answers at least!
     
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  9. bababear_50

    bababear_50 DIS Veteran

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    Hi Hon
    I agree--not knowing can drive a person crazy.
    I gained weight and should have put two and two together but I was dealing with the loss of my brother and a back injury at the time. It wasn't until my hair started to fall out in clumps that I freaked and made a quick appointment.I think I am going to have to talk to my doc about more frequent blood work.
    I hope you get some answers soon and best wishes to you.
    Hugs Mel
     
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  10. Christine

    Christine Would love to be able to sit on

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    I take a mixed dose of meds. No problem and it's often done.

    bababear, your labs may show as slight hyperthyroid but yet you feel good. That's perfectly fine to stay that way as long as you feel well. Most of us thyroid cancer patients are kept slight hyper. Just keep watching it and make sure it doesn't go too far in that direction and you should be good to go.

    To dosekies: During my thyroid cancer treatment many years ago, I was *significantly* hypothyroid for many weeks. I'm talking a TSH of 145. I did not feel like I needed to sleep all the time or was overly tired. My weight gain didn't amount to my and according to any endocrinologist I've gone to, hypothyroidism will, at most, cause a 5% weight gain.

    What did make me awfully tired was being low on iron (not anemic, but low iron). This can be measured through a ferritin test. My gosh, I couldn't do anything. Exhausted by 9AM in the morning, lack of ambition/drive. Once I took an iron supplement I was much better. Once I stopped having periods and went into menopause I was TONS better.
     
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  11. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    macraven - glad to see you posting. How are you feeling?
     
  12. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    bababear - welcome. I don't take multiple diffferet doses but my endo has me taking an extra pill on sundays for now. That will change I am sure after my next blood test as I feel like crap.

    doeskies - wishing you all the best with the blood tests and hope you get some answers for your health issues

    Christine - did you enjoy the short lived almost furlough. We will see what the next couple of weeks bring. Dh just found out they got rid of another guy from his old dept. A really smart guy gheesh.

    And in my little world. I am behind on the blood tests so I actually skipped one due to being sick and dh work commitments. So in 2 weeks I will have the blood tests or maybe sooner for that and the sonogram. I also never got the flu shot or the pulmonary function test. Yup I am batting 100 these days and I am cancelling the appt. with the surgeon in NYC. Its a stressful trip there with dh driving for the surgeon to spend 5 minutes with me. He said it would be the last visit with him. If he wants to do some research or something I will just send him a picture of the scar what else would he want. He wouldnt scope me or anything. My neck has been bothering me a little but we will see. A sono picture speaks a thousand words lol.

    At church yest the pastor told us not to hug, shake hands with anyone etc due to the bugs going around. I was never so happy in my life. Last week I think some guy was miffed because I wouldnt shake his hand. Its going around here like crazy, so many sick.

    Ds1 and DS2 and future dil have all been looking at houses. No luck so far.

    And in wedding planning news. Hmm, I told my cousin when the wedding was. Yup he will be on the disney cruise. The pastor cant marry them because he will be on vacation, they are asking one of ds1 friends. He is really a cop but went to Liberty to be a pastor and is ordained. We shall see. Oh and future dil went wedding dress shopping with her sister. Her mom didnt go. She showed me a picture on her phone. It was not a mermaid dress but I guess she will pick out something she likes. I dont know what wedding etiquette stuff is these days. I will be happy to show up at her bridal shower and then the wedding. I am looking online at dresses. Its not fun. I wear a big size. A few look interesting. I want something with a jacket or sleeves because I am sure the place will have ac and I will be cold. Also some have lower backs and I already have more scars there from my back surgeries so its like cover up everything lol.

    I am loving the handicapped parking permit!!
     
  13. Christine

    Christine Would love to be able to sit on

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    I definitely did NOT enjoy the short-lived furlough. It was a very stressful day and just not knowing what you are doing it tough. But it was over and we have spent an inordinate amount of time planning for NEXT WEEK'S potential furlough. Such a waste for this country. Anyway found out that now I am considered "excepted" so I will be working shutdown or not. Which is always sort of weird/eerie.


    So I did not get the flu shot either because I'm paranoid. But I'm terribly paranoid about the flu (go figure). I am have essentially been hibernating in my house whenever I can. Our local news reported last night that churches in the area were getting rid of communion with the chalice cup. Seriously? It's just now occurring to them to stop that? I have lots of shouting matches with the TV. Personally, if I was worried about the flu or if I was compromised, I would not even go to church. I think the large, group gatherings huddled in one place are bad news. Especially since they are not reporting that people who aren't even exhibiting symptoms yet are exhaling the virus into the air. The particles are so small that they just hang at face-level for hours. Best to just be out of crowds. Period.

    I have my 6 month endo check up on Monday. Hopefully it will be uneventful.
     
  14. macraven

    macraven Proud Redhead Moderator

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    Christine how was your check up Monday?

    Hope all is fine

    I had my surgery and was told should be feeling much better 5-10 weeks from surgery
    My large tumor was 224 mm

    Surgeon did a good job and stitched me up where scar will not be as noticeable

    Was stuck at ohare longer then planned but so were many others
    Snow storm knocked a lot of flights out and delayed many others

    I ended up at the airport for 11 hours but I did get out that night
    I was one of the lucky ones that was switched and not having to sleep in the hotel by the gates

    Just had second week of labs done and working on synthyroid level

    Hope all are staying well and have been able to avoid the flu
     
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  15. Christine

    Christine Would love to be able to sit on

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    macraven, glad to hear the surgery is over with and all seems to have gone well. You're a trooper. 11 hours in the airport would have had me going out of my mind.

    My checkup on Monday was good. TSH just a little low. Thyroglobulin is undetectable. My TSH keeps dropping without me changing my meds. Obviously still being impacting by declining estrogen. I may back off a 1/2 tablet a week. I haven't been sleeping well for a few weeks. Honestly, it's probably work stress but who knows.

    I am still in "flu avoidance" mode. Not going out a lot and trying to stay away from people. Two people in my office got sick early in the week. Not sure if it was the flu or not. They did have their flu shots. I can't wait for this time of year to be OVER with.
     
  16. SingingMom

    SingingMom DIS Veteran

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    DD flies home tomorrow and then the three of us are heading to LAX for the Backstage Magic ABD! We added one pre and one post day, so it should be fun. Ive never been to California, so I'm looking forward to it! DH & I packed this weekend, and now we are seeing the temps cooler in California. I know "layers", but some things just don't go together. LOL Oh well. I'm SURE we can handle it! Just returned from DH's leg Doppler and all was good for clots. We are going to wait on the CT with contrast until June time frame, so there's enough to time to make sure the xarelto is working and the initial damage is ok now. Tech said he's good to fly - go have fun. Again, we thank the good Lord for leading us to the right doctors at the right time, or we wouldn't have him with us.:love1:
     
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  17. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    Just checking in thyroid peeps

    macraven - was your tumor really 224 mm? That is like twice my size I think of 12.5 cm. if so, that was a huge one for sure! Wishing you all the best and hope you are well on your way to health and healing

    singing mom - I hope you have a wonderful trip with your family and great to hear your dh good test results after all he went through

    Christine - do you know when your May disney dates are. We will go around the 17-23 I think so far. I told ds2 not to have the bridal shower then lol. We will most likely be at the Swan or maybe some time of it at the YC or BC if I can get a good rate or cash in some of dh ff miles for it.

    Well Friday I had my blood work and sono. So its wait and see. I got my great sono gal. Just love this lady. She said you are probably wondering why I am not going down the hall (after the test). I said yes as she always goes to review with the radiologist. She said the rad. is gone and she told me to only take extra pictures if I see something new etc. and I don't so you can go. I want to believe all is well but with all I have been through I really dont trust anyone or anything except God. My dh and ds3 were telling me I just need to be happy and accept it. I guess they dont know how my mind works these days lol. I just have to deal with things my own way.

    In other news. Ds3 needs a new car unless this one can get fixed. We told him just buy a used one. He has the original car we bought him for college and it was used when we got it and ts 12 years old. It doesnt pay to put money in it. He needs something reliable for when he gets married etc. Ds1 is looking at houses., ds3 is contemplating moving to Calif. to be travel nurse. I said fine, but cant you wait until after the wedding. Supposedly he is going to be the best man. Dh will probably go to the west coast next month. Always something. Hopefully this week I can schedule the pulmonary test and mammo.

    Check in when you can
     
  18. SingingMom

    SingingMom DIS Veteran

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    Just back from our Adventures by Disney Backstage Magic tour. Very interesting, especially since I had never been to the West Coast. Our guides were fabulous, our group was very pleasant and small - only 17, which was great! Saw special things not open to the general public - what a thrill. Imagineering was so surreal. Stood at the corner of "Mickey & Dopey" - I felt like I was in the middle of "One Man's Dream"! Unfortunately, we only had one day of warm weather - Southern California had quite a cold spell while we were there. Didn't pack as wisely as we should have!

    I will say - did not like LA as much as NYC. TOO MUCH traffic!!! Disney Parks are quaint - Disneyland Hotel room was fabulous, but I prefer the amenities at WDW. The Loews Hollywood Hotel had a great view of the "Hollywood" sign and was next to the Chinese Theatre, but the area was a bit too congested & tacky. Would have preferred staying in West Hollywood/Beverly Hills area. The Grove was very nice. DD and I are fans of Real Housewives of Beverly Hills and Vanderpump Rules on BravoTV (our silly guilty pleasure! :goodvibes ) so on two of the evenings we were in Hollywood area we had dinner at SUR and Villa Blanca! Both were terrific! Best two meals of the entire trip!

    Two extra special surprises of the trip - a private tour of Walt's apartment and a special early park entrance for our group - we took pictures in front of the castle all by ourselves - AND we got to meet the new President of Disneyland Resorts! What a magical experience!! :tinker:
     
  19. luvmarypoppins

    luvmarypoppins <font color=darkorchid>I am debating whether to pu

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    singing mom - sounds like you had a wonderful trip. I would love to see Walt's apartment too

    macraven - how are you feeling? I hope you are getting back to feeling great. I am sure its a slow process

    Christine - have you had any bad weather down there?

    Everyone else jump in and comment and update us!

    Well yest. was my endo visit and it turned into an umm....ordeal to say the least. First the resident comes in. O.K. its a teaching hospital I get it. I chit chat a little with her and she is assigned to ds3 floor and knows ds. She says he is interesting or something like that. When I told ds he said she is strange and they all say she needs a makeover lol. Anyways I checked the list of questions and she asked me about my foot. I told her the left foot was swelling and one toe was discolored. So she looked at my foot, the dr. looked at my foot and said I hate doing this but I m sending you to the emergency room, what???? What a nightmare. She said she thinks I had a blood clot. Well long story short after hours in the er and having ds come down a few times and me having the dopler stuff and a cardiac enzyme test they concluded I dont have a blood clot, dont know why my foot is like this and see a cardiologist and my regular dr. Well the endo and I barely got to discuss my cancer stuff. I remember that she said my tsh is great either 0.4 or 0.04 which is a great decrease from 1.57. She is making me take an extra 50 mg pill on sundays and going for a blood test in a month. Then when I checked out I realized that she didnt give me my 6th month test slips so I insisted the clerk go and get them which she did.

    Now today I realized she never did my prescription refills, that is done electronically and then I realized we never talked about the pet scan which I should have in June. So when she calls back with the results or if the nurse does I am getting on this in a month and resolving this. My head spins.

    Now Mon. I can have the primary dr. give me the business about not getting the pulmonary function test or mammo yet good because the scripts are up so we will try again.

    Ds 1 keeps getting outbid on houses, ds2 and almost dil might put an offer in on a house and they both had the flu. Ds3 is going to California on friday to visit his friend who is a travel nurse. They want to go to Disneyland and I guess he will check things out for his probable future move. My head is spinning. I am still looking on line for a gown long dress for the wedding. She told me dark colors and now ds showed me a picture of her mothers gown like a sparkly greyish white, sorry that is not my style, She can do the glitz and glam. Too bad its not something casual. Ds laughs as I said I dont think I own a dress anymore. Her dad went with her to pick out the wedding dress. She hasnt showed me a picture. I dont care about it as I have enough on my mind to deal with. Also we are dealing with the other property we own and tenant and the never ending stuff with that.

    Check in when you can.
     
  20. macraven

    macraven Proud Redhead Moderator

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    LMP, sounds like you had a heck of a day with all that running around for the testing!
    Good you did not have a blood clot, it is the last thing you need to deal with.

    I ended up with two of them after the knee surgery and still get checked.
    When I had the gland surgery in January, coumadin was still registered in my blood.
    Long story.....

    Yes, I had a large tumor removed and a parathyroid gland too.
    Only have about 3 more weeks before I'm released from the doctor from that surgery.
    I'm get better every day

    I'm confident that all will be fine so with thinking that way, booked my Disney trip for september today.

    Hope all are doing fine!
     
  21. SingingMom

    SingingMom DIS Veteran

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    Hit with 22 inches of snow and lost power for three days! Just returned last night. We have a small generator and wonderful neighbors who set the furnace up to the generator. So, we had heat and the fridge was plugged in. Lots of trees down - area was hit really bad!

    I'm scheduled to go to see dd on Wednesday - my girl wants corned beef and cabbage for St Patricks day, so by golly, this Italian mom is flying to Florida to make it for her! lol Poor hubby has to stay home to work, but he's so good about knowing I NEED to get away from this cold & snow!!!!

    Feel better Macraven! You've gone through a lot. LMP - you'll find a gown - don't fret! Get something you feel happy in. So what if others decide on glitzy! You will look lovely. (and remember the joke they say about the "mother-in-law" - Her job is to wear beige and keep quiet. LOL)
     
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