Well I am done with all the torturous testing. This last test was horrible. The whole radiation onc. dept. has def. changed for the worse around there. I think I used the words what a bunch of (mess )ups- different word) very loudly so the onc. and onc. nurse could here me. The care I received was abysmal at best.
Day 1 - I had to wait 1 hr. and 45 min. just to get a shot. Dh had to go and advocate on my behalf. It was later determined after they blamed me for not calling back soon enough that the onc. did not sign the med. release papers correctly or something like that.
Day 2 - Shot time was less than 45 min. This was suppose to be that way Monday.
Day 3- Went to ask about some blood test that was on my instruction sheet. No one knew anything. Onc. is sitting at his computer behind the desk ignoring me. They say, keep the appt. you have for next tues. I said - what is that for. The nurse said to go over your test results. I said - do you mean to tell me I am having this test today and you are going to make me wait until next tues for the results. I said that is just torturous I said cant the onc. call me. She said he will be at home since your test is so late today. I said cant he just say good or bad, yes or no. He for crying out loud is sitting there ignoring me and then finally relents to call.
The test itself was long and horrible. Pain was searing up my r hip across my skull from ear to ear. They did stop and try to reposition me. Then at the end of the test My r lower spine was seering in pain, this was due to all my back surgeries and laying on the hard plastic table. I was shaking with pain spasms. They wheeled me into the waiting room and I am greeted with dh talking to the rad. onc. on the phone. As predicted the tumor did not take up any of the radiation, so now radiation will not even help me, The only option is surgery and try to cut out what they can, what looks bad etc. The rad. onc. tells dh on the phone. I am cancelling the next appt. because there is nothing I can do to help you, goodbye, gheesh. I felt like my hopeful turned into hopeless,. Oh and I also had a giant stomach ache after that that then resulted in 3 rounds of explosive diarrhea, (Thinking of you Mrs. Incredible too).
So now on tues. I am going back to the endo and we will talk surgeons. I feel like this will be the surgeon wheel of fortune, spin and see who comes up??? My head is spinning and I dont have a good plan yet. Say a prayer.
GAGWTA
