Just a quick update on my daughter's latest. For those not following, Kendall has been seeing a rheumatologist for several years. She was diagnosed with fibromyalgia. Recently, she started showing other symptoms. She will lose partial sight in one eye. It usually lasts for about 30 minutes, but has lasted as long as four hours. She says it is like having a black dot in the center of her eye. She has started having twitching in her limbs and balance issues. She has trouble swallowing. She also has 8 bulging discs in her back.
Her rheumatologist and her urologist both suspect multiple sclerosis. I made an appointment with a neurologist. He was very difficult to understand and really didn't seem to listen. He just kept asking about headaches. Headaches are not the problem. He prescribed Cymbalta. I asked if she should stop any of her other medications and he said no.
When I went to pick up the Cymbalta, the pharmacist had flagged it as a possible dangerous interaction. I called her rheumatologist who said she should not take the Cymbalta as it would cause a seratonin overdose which could lead to seizures. Needless to say, I lost all faith it that particular neurologist. He had ordered a brain MRI, so she went ahead and had it.
I began searching for another neurologist. I looked at the reviews on each and most were very bad. I finally found one with good reviews. Unfortunately, he does not take our insurance. I told them I would pay out of pocket as I just needed to have her diagnosed one way or the other. His nurse said he would have to look over her records and then, he would decide if he will see her. I sent over all her records last week. As of the middle of this past week, he has yet to look them over. So, we are waiting.
If she is diagnosed with MS, there is a doctor in this area that only treats MS patients. His reviews are good and he does accept her insurance. Unfortunately, he won't see her until she's been diagnosed.
It has been very frustrating. We just really need to know what she is facing. I really don't want her to have MS, but I want to know what is going on so she can be treated. She is deteriorating. The treatment plan she has been on is for fibromyalgia and is not effective for what is happening now.
Hopefully, we will hear back soon that the neurologist will see her and we can move on. I hate this. I would much rather it were me!
I am so happy for your good news, and I know your mom was there with you. I understand your feelings about your dad moving on, after our son died, our daughter in law remarried just 3 years later and it was very hard to accept, and hard for our grand children too. But we all need someone to share life with. I am happy your sister has another child too, I know your mom loved Zoe so much! thankyou for coming to update us, and I honestly can not believe she has been gone so long already. Our son has been gone for 8 years now and it still feels like it happened just yesterday. Oh and I am glad your dad recovered! I couldn't even believe it when that happened, it was such a hard time for them both!
