pat9283
Mouseketeer
- Joined
- Jan 16, 2007
Hi all, gosh I haven't posted on DIS for while, since planning my wedding actually! I do check in often though.
Well since I last posted I have given birth to the our new Disney addict my beautiful little boy Riley who is now 1 year old! about 3 weeks after his birth we found out he has PKU, ( if you don't know what it is you're best googling as I'd take all day explaining haha!) but basically we have to limit protein in his diet or risk brain damage. He is otherwise perfectly healthy and with a controlled diet will grow up without any problems.
It also means he can't eat:
Meat, fish, dairy, eggs, soya, tofu, chocolate, nuts, seeds, beans etc basically any of your really good high protein foods
and can only have limited (very, very small) amounts of
normal rice, normal pasta, normal bread, normal pastry (we can get these things on prescription as a low protein version) potato, cauliflower, broccoli, peas etc
So we're looking to go to Disney again next year and as you appreciate, it takes some planning to take a child + supplements + special foods a 11hr plain journey away! So I'm looking for any advice, tips, pictures of food you've had, any help at all really. We're trying to make this trip about our first family holiday and not about PKU!
I've spoken to the Disney diet people who have sent me the e-mail form out and told me they use cambrooke foods to supply their low protein foods. However, being in the UK I don't have experience of Cambrooke foods so I really don't know what to expect or what type of meals we might be offered. Thanks in advance for any help you can offer. xxx
Well since I last posted I have given birth to the our new Disney addict my beautiful little boy Riley who is now 1 year old! about 3 weeks after his birth we found out he has PKU, ( if you don't know what it is you're best googling as I'd take all day explaining haha!) but basically we have to limit protein in his diet or risk brain damage. He is otherwise perfectly healthy and with a controlled diet will grow up without any problems.
It also means he can't eat:
Meat, fish, dairy, eggs, soya, tofu, chocolate, nuts, seeds, beans etc basically any of your really good high protein foods
and can only have limited (very, very small) amounts of
normal rice, normal pasta, normal bread, normal pastry (we can get these things on prescription as a low protein version) potato, cauliflower, broccoli, peas etc
So we're looking to go to Disney again next year and as you appreciate, it takes some planning to take a child + supplements + special foods a 11hr plain journey away! So I'm looking for any advice, tips, pictures of food you've had, any help at all really. We're trying to make this trip about our first family holiday and not about PKU!
I've spoken to the Disney diet people who have sent me the e-mail form out and told me they use cambrooke foods to supply their low protein foods. However, being in the UK I don't have experience of Cambrooke foods so I really don't know what to expect or what type of meals we might be offered. Thanks in advance for any help you can offer. xxx