Frustrated, sad, mad, and out of ideas

"That ain't happening!"

What you mother said about moving into assistant living or retirement old people places is exactly how I feel about it. Never in a million years would I want to live like that. If one of my children ever thinks they can force me to go. hahahah.

As a daughter to an aging mother I understand your pain and worry..

But still Im in the camp of anti adult daycare places.



My MIL proudly announced from the day I met her (in her early 50's) that the only way she was leaving her house was feet first. In the end, that is exactly what happened. And it was an incredible burden on her family, one that leaves scars to this date more than a decade later.

People this steadfast in their desires need to decide at what cost they are willing to take that stand.
 
No one WANTS to go into a nursing home and I have run across some under trained,under staffed ones.
However, there is NO WAY I believe my care especially physical care should be placed on my dd. Majority of her 16 years, she has seen me be a caregiver to both my parents, she will have her own life.
I have joked I will go peacefully into a place , but I know I may get someone who will have enough of my mouth saying i know how this or that or patients rights and smother me with.a pillow.
 
Lauradis: please dont take this as a snark, but when you are older and are able to go out how you what,.when you want then you can count yourself as lucky to be able to do that.

No one plans to have a stroke or fall and do damage to their body.

My mom was one of those people who had 9 lives, but the last 2 and half years, she almost died twice within a months time, had a major stroke while fighting for her life.
Vascular dementia following stroke,.so at that point she wasnt capable of wanting to off herself if she wanted.
Was bedridden. I took care of her here at home with the help of a dr who would come out to the house, home health as well.
She died in her sleep.

Caregiving isnt for everyone and it ages you.


Im sorry that must have been painful, to watch.

Watching the end of someones life is more then likely the reason children place elderly parents in nursing homes. You are so right you cant plan for major medical issues at any age. We have no crystal ball that tells us when or how.

I never take anything as rude or snarky on the disboard.
 
My MIL proudly announced from the day I met her (in her early 50's) that the only way she was leaving her house was feet first. In the end, that is exactly what happened. And it was an incredible burden on her family, one that leaves scars to this date more than a decade later.

People this steadfast in their desires need to decide at what cost they are willing to take that stand.

I know that once im mentally not aware my adult children will stick me in a home.

Hopefully in the next 30 years Americans will allow assisted suicide, but maybe not most assisted living places are for profit right now and its doing great business.
 


I know that once im mentally not aware my adult children will stick me in a home.

Hopefully in the next 30 years Americans will allow assisted suicide, but maybe not most assisted living places are for profit right now and its doing great business.


The problem arises in those years (and I do mean years) where the elderly person is faltering, but does not yet have a diagnosis...... where you know they are having issues but not everyone in the family agrees on whether it's time to do something they swore they never wanted to have happen. Lots of things can go wrong.

Drawing such a line in the sand really complicates things for those who must later choose to cross it.
 
In our research , assisted living does not change diapers , will not get you out of bed or dispense meds
Those things my late Mom needed and so was in a nursing home.

When we were looking for assisted living for my mom, all of the places we found did those services if you paid extra for them. They all had some basic services included, daily checks, light cleaning, checking that meds were being taken, one or two meals/day, etc. and then if the resident needed more, they had basically a menu of services you could pay for. None of them could do skilled nursing things like changing ports and such though.
 


Just stumbled upon this thread. As the only child of 80 something parents, I am walking in the same shoes as many of you. There are no easy answers. I live in an area of the country where many seniors come to retire. I cannot tell you how many retirees around me must sell their beloved retirement homes, and move to be near their families for the support that they need. I could see the writing on the wall, so my parents are with me, and we have quite the multigenerational house going on! It is indeed a challenge, but this is the season of life that we must pass through right now, so it's all about acceptance on everyone's part.
I feel that I am blessed to still have my parents in our life, and when I have a bad day I have to remind myself to consider the sad alternative. May all those who came to share their experiences and words of advice here on this thread be blessed with a happy, and peaceful Mother's Day.:flower3:
 
Im sorry that must have been painful, to watch.

Watching the end of someones life is more then likely the reason children place elderly parents in nursing homes. You are so right you cant plan for major medical issues at any age. We have no crystal ball that tells us when or how.

I never take anything as rude or snarky on the disboard.


Thank you. I also believe in assisted suicide. Mom wasnt in pain, but I knew if she were in a non dementia state and was truly aware of what was going on, she wouldnt have wanted to go through all that.

The day she passed was a good day earlier. And she went quietly so glad for that.

This may sound crazy, but I am ok with it, but I have had very vivid dreams of her and the last one one she was with my df. She has apoeared how she was back in the day healthy wise, so those have given me comfort.
 
You guys are pretending like there isn't depressed people in old people homes.


I'll be honest, if you told me a year ago my dad would be happy as a clam in an assisted living home, I would have told you that you were crazy. There are some good ones! We have been very fortunate!

OP, based on my recent experience, your mom may be showing some signs of dementia. Have you had her assessed by a gerontologist?
 
My mother is almost 95; she came to live with me (and my husband before he passed away) nearly seven years ago. Physically, she is in incredible shape, mentally not so much. I have to go to work every day because I unexpectedly inherited my husband's business and it won't run itself. As of right now, I can leave her during the day; I think she can do more for herself than she is willing to admit when I am home. She is very childlike, totally self-centered and thinks it is perfectly fine that I am 100% tied to her and this house, won't hear of having anyone come in to help her in any way. I am "all she needs", so why should I want to be anywhere else? I am going away for a few days next month, have a good friend who knows her well come in to stay, and Mom isn't one little bit happy about it. She knows how to push my buttons and lay on the guilt, and I let her. I have a brother, but he is much too busy to do anything for her, calling her once a day makes him a major caregiver in his mind.

Yes, I am weary; I am no youngster myself. Those of you who are adamant that you won't have outside help of any kind, please think of your children. Their love for you won't allow them to go against your wishes, but you aren't showing your love for them.

OP, is there a "home instead" organization in your mom's area? They are nationwide and get very good reviews. I plan to call them soon, whether my mom is happy with it or not.
 
My plan for end of life care, doesn't have to be yours. I think its completely reasonable to say I will never do x,y,z. Just like I think its reasonable that you choose to go to care facility.

More then likely I will commit suicide, when my body starts to fail me, when I feel as my life has been full.

I don't think my option is for everyone.

Your wrong most of the depressed senior in nursing homes are the ones that don't have family caring for them on a regular bases. They are basically prisoners of their age and the facility and abandoned by their loves ones that see them as a "burden" to care for, except on holidays.


Thia also puts a burden and guilt on your family. Also would your family get your life insurance to pay for funeral expenses etc if you commit suicide?

My mother is almost 95; she came to live with me (and my husband before he passed away) nearly seven years ago. Physically, she is in incredible shape, mentally not so much. I have to go to work every day because I unexpectedly inherited my husband's business and it won't run itself. As of right now, I can leave her during the day; I think she can do more for herself than she is willing to admit when I am home. She is very childlike, totally self-centered and thinks it is perfectly fine that I am 100% tied to her and this house, won't hear of having anyone come in to help her in any way. I am "all she needs", so why should I want to be anywhere else? I am going away for a few days next month, have a good friend who knows her well come in to stay, and Mom isn't one little bit happy about it. She knows how to push my buttons and lay on the guilt, and I let her. I have a brother, but he is much too busy to do anything for her, calling her once a day makes him a major caregiver in his mind.

Yes, I am weary; I am no youngster myself. Those of you who are adamant that you won't have outside help of any kind, please think of your children. Their love for you won't allow them to go against your wishes, but you aren't showing your love for them.

OP, is there a "home instead" organization in your mom's area? They are nationwide and get very good reviews. I plan to call them soon, whether my mom is happy with it or not.

I just want to reach through the screen and give you a hug
 
In the kindest thought possible, why don't you quit making it a battle. She's 85, she's tired. You are giving her stimullation for a long time every year. Is there a community center near her that might provide some services, like transportation to the grocery/an outing once in a while? How about a senior center and their day trips? Can you go there for a week and go in with her so she is familiar with how much walking she'll need to do? Also, if she needs a scooter, can she afford one and a lift vehicle? Do you know anyone where she lives, any friends of yours who would visit once a month for lunch? There are so many ways to socialize her. Set her up to skype and skype for 5 minutes every other day. Are there other people who coulld skype with her? Neices, grandchildren, old friends? She doesn't have to go out alone if she can skype. Does she have cable? Does she read? Would she listen to books on tape? I find it a pleasant experience akin to my parents or teachers reading to me. Quit making it a battle, like I said before. There are thousands of self-help books about caring for aging parents. Maybe find one that will help you detach a little.
 
Even the luxurious ones with same age range social interaction, activities only geared for seniors seems like jail to me, but what do I know im only in my 40s.

I personally would never make or require my children to choose a vacation or staying with me or whatever at any age.

I don't want long term care insurance, I want a DNR instead and to live my life free from supervision and length of leaving requirements.
 
In the kindest thought possible, why don't you quit making it a battle. She's 85, she's tired. You are giving her stimullation for a long time every year. Is there a community center near her that might provide some services, like transportation to the grocery/an outing once in a while? How about a senior center and their day trips? Can you go there for a week and go in with her so she is familiar with how much walking she'll need to do? Also, if she needs a scooter, can she afford one and a lift vehicle? Do you know anyone where she lives, any friends of yours who would visit once a month for lunch? There are so many ways to socialize her. Set her up to skype and skype for 5 minutes every other day. Are there other people who coulld skype with her? Neices, grandchildren, old friends? She doesn't have to go out alone if she can skype. Does she have cable? Does she read? Would she listen to books on tape? I find it a pleasant experience akin to my parents or teachers reading to me. Quit making it a battle, like I said before. There are thousands of self-help books about caring for aging parents. Maybe find one that will help you detach a little.

I disagree with the bold. There may be many ways to socialize some people, but that isn't the case with my mom. A person needs to want it. A person needs to do some things to help themselves.

I will address every one of your points just for kicks and giggles.
1. Nearby community center does not offer transportation. It is strictly a place where seniors go on their own to engage in activities. She isn't capable of walking into the building.
2. Senior center day trips - Yes, they offer those. No, that isn't an option for her. She is not physically able to get up the steps of a bus.
3. Going for a week is useless. She knows how much walking is involved. She can't walk without the use of a walker period. She is not physically capable of putting a walker into and pulling a walker out of her vehicle. She just isn't. We have tried a dozen different walkers. She can't do it. Driving from point A to point B isn't the issue. Once there, she needs a walker.
4. The price of a scooter isn't the problem. She can easily afford a scooter. She doesn't need a scooter in her condo. Her walker is fine. The problem is, the scooter can't stay on the back of her vehicle. It would get stolen (which is another whole issue of the unsafe area she lives in). Her condo is not set up to allow a handicap ramp. If we attempted to install a ramp to her front door, the ramp would literally have to go out into the middle of the street so the angle wasn't so high that she'd tip over. She uses her side door. While we could somehow make a ramp work going up to that door, that's as far as it would go and she'd be stuck. There is an immediate turn; one that the scooter simply couldn't make. We've tried it with the smallest scooter on the market. If we can't do it, she can't do it.
5. No, she doesn't have any friends who can take her to lunch. They have all died. There are exactly two friends left and one is confined to a wheelchair on oxygen and the other has Alzheimer's. When she arrived home on Saturday, there was a message on her answering machine that her cousin had died. She said she thinks that is her last extended family member. How sad. I didn't live in the area she lives in so while I am from the same state, my friends are a minimum of an hour away so I don't know anyone personally who can take her out.
6. My mom doesn't Skype. She only plays solitaire on the computer and refuses to learn anything else.
7. Again, there aren't any friends left. All grandchildren and children live out of state except one brother who lives 45 minutes away. He does visit her about every ten days to two weeks. He has his own problems. I have a cousin (dad's side) who drives about 1.5 hours every six weeks or so to take her out to lunch.
8. She does have cable. Not sure how that socializes her?
9. She doesn't do books on tape. She doesn't read. She used to love doing word searches and crosswords. I have stacks of those for her and she doesn't touch them anymore.

I'm not trying to be argumentative. Your ideas are great in a perfect world. I truly wish it was that simple. She went home to a house with very little food in it on Saturday. Her plan was to go to the grocery store on Sunday. She had terrible arthritis pain on Sunday and didn't leave the house. Today there are storms and tornado watches so she won't leave home again. It's really a sad situation. She needs help and refuses it. I can't fully detach as long as she lives with me in the winter because I see it day in and day out. Oh well. Such is life right now. Sucks, but it is what it is.
 
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My mother is almost 95; she came to live with me (and my husband before he passed away) nearly seven years ago. Physically, she is in incredible shape, mentally not so much. I have to go to work every day because I unexpectedly inherited my husband's business and it won't run itself. As of right now, I can leave her during the day; I think she can do more for herself than she is willing to admit when I am home. She is very childlike, totally self-centered and thinks it is perfectly fine that I am 100% tied to her and this house, won't hear of having anyone come in to help her in any way. I am "all she needs", so why should I want to be anywhere else? I am going away for a few days next month, have a good friend who knows her well come in to stay, and Mom isn't one little bit happy about it. She knows how to push my buttons and lay on the guilt, and I let her. I have a brother, but he is much too busy to do anything for her, calling her once a day makes him a major caregiver in his mind.

We learned this last year and it may be a help for you - many senior facilities do respite care. For my parents it was a great place where my Grandma could go while they were away, and while she insisted she never wanted to be in a senior home, she truly liked the facility. So much so that after their trip the respite became her home where she was quite happy until her passing. All facilities are different, but the right one is a huge blessing.
 
In a perfect world I would like to live on my own until the end kicking and screaming and tearing it up until my last breath. However I NEVER EVER want to be a burden to my children. I hope that if/when the time comes that I make it easy for them to do whatever is the easiest and least stressful for THEM. I hope they won't stick me somewhere and forget about me but I also expect them to live their lives. Hopefully we won't ever have to deal with that but if we do I plan to be as compliant as possible.
 
Boy Lisa- your Mom and my MIL could almost be twins!!
She has Computer that she uses mainly to play casino type games
She HAS a Facebook but simply can't figure how to GO TO my page or go to News Feed..so sometimes I post pics TO HER PAGE...and she still claims she doesn't see them- LOL

I think there's a Senior Center in her town...but she claims that's for OlD ladies ( not her young 87 year old self)

She will spend an hour or 2 at Walmart waiting for the electric scooter- but doesn't mind...
 
In the kindest thought possible, why don't you quit making it a battle. She's 85, she's tired. You are giving her stimullation for a long time every year. Is there a community center near her that might provide some services, like transportation to the grocery/an outing once in a while? How about a senior center and their day trips? Can you go there for a week and go in with her so she is familiar with how much walking she'll need to do? Also, if she needs a scooter, can she afford one and a lift vehicle? Do you know anyone where she lives, any friends of yours who would visit once a month for lunch? There are so many ways to socialize her. Set her up to skype and skype for 5 minutes every other day. Are there other people who coulld skype with her? Neices, grandchildren, old friends? She doesn't have to go out alone if she can skype. Does she have cable? Does she read? Would she listen to books on tape? I find it a pleasant experience akin to my parents or teachers reading to me. Quit making it a battle, like I said before. There are thousands of self-help books about caring for aging parents. Maybe find one that will help you detach a little.
You can lead a horse to water...and all that other garbage.
 
ahutton, yes, my daughter's MIL was in respite care when her daughter went out of town, and she ended up in that place permanently. So I know they do exist around here, but for the present I think my mother would be better off with inhome care. She is such a picky eater. Thanks for the hugs, y'all.

Lisa, I feel your pain and frustration, but I obviously can't offer advice. I hope you find a solution for your sake and your mother's.
 

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