kellyw8863
DIS Veteran
- Joined
- Jun 4, 2009
It is one of the hotter parks....well you can always make Feb your 1st choice...
We found the stroller to be HUGE for Jakers and yes while he has IV fluids that keep him going, you could do the same with Ali and just run pedilyte on a slow rate thru out the day and see how things go. I can not tell you how many times Jake passed out for 20 mins here and there and boom he back to himself ready to go...
Again, the Feb time is just a suggestion....
You're too funny. We do plan on bringing Ali's stroller and probably renting one for Maya. I also have a cooling vest for her, though I couldn't get her to wear it last summer. I may just not give her the choice if it looks like she is really struggling.
We spent the night in the ER last night. Deyki had a fever and abdominal pain. His hemaglobin dropped to 7.5. They think it's a virus. Thankfully we were able to go home at 4am. We go back first thing in the morning and again on Tuesday for more IV antibiotics and labs. Please be praying he keeps getting better, doesn't get admitted, and only needs to be stuck once for his IVs each day.
I did load more pictures on my photobucket account to prepare to continue our TR. It takes forever to load them with my ever so slow dial-up connection!
If we could get a few days of stability around here, I would continue our TR with Deyki fighting Darth Vader! Hopefully soon!
I hope that he's feeling better today and that he doesn't end up being admitted.
Our two year old Landon is completely g-tube fed. Our wish trip was the last week in May 2009. It was really hot the day we went to AK. We gave Landon tons of extra water that day through his tube. We just put it on a slow steady rate to keep him hydrated.
Our problem is that if she's already feeling punky, we have a hard time getting her rate past 90. I don't know why since her motility issues are mostly upper and lower (stomach is fine to my knowledge), but she'll scream that her belly hurts. She needs about 1200 - 1500ml of free fluids just for maintainance.
Hi guys.....I notice lots of names on here that I don't recognize so I'm sure my own name is going to be foreign to many of you. We just took our trip to GKTW in December (10-18) and had a fabulous time! With the above talk about Wish Trips and making them special I thought I would paste a post I had on my PTR (maroo had suggested I do so but I hadn't gotten around to it). Just seemed appropro given some of the above posts.
Things that occured to me while on Matty's Wish Trip". Now I realize of course they are only my opinions but, perhaps, they may help one other person as they plan their upcoming trip.
1. A Wish Trip is just that.........a 'Wish Trip' and not just another 'family vacation'. It deserves to be extra extra EXTRA special. Embrace the 'button'. Wear it proudly. Flash that GAC and don't feel badly. They give Wish families these things for a reason. The majority of the staff WANT to make Wish trips extra special but they can't go out of their way unless Wish families make themselves known. That button is truly Magic. Let it work for you.
2. A Wish Trip is just that........a 'Wish Trip' and not just another 'family vacation'. It deserves to be a trip like no other. A trip that is unlike one's typical family Disney World vacation. It can be beneficial to think outside of the box. Be creative. The ability to take advantage of activities and adventures that might not be possible on one's typical vacation budget is what makes a Wish Trip a once in a lifetime experience. And don't forget GKTW. The Village and it's activities. Make time if possible. There are lifetime memories to be made there as well. And just being there is likely to give you goosebumps. It's what it represents. It, too, is magical.
3, A Wish Trip is just that......a 'Wish Trip' and not just another 'family vactaion'. It is likely to be a Trip that will change you. And it is just the beginning. We spent our last day at the GKTW Village, going back for a relaxing day of play after a very very busy week. Suprisingly, I found that I left that evening for the airport feeling uplifted, not sad as I had expected. Feeling like we were now part of an extended family and knowing that we would be back. We are actually now talking about planning a one year anniversary trip next December which will, of course, include one, or more, visits to GKTW (and perhaps even an afternoon or evening of volunteering for dh or myself). A Wish Trip is a once in a lifetime experience that deserves to be remembered and celebrated for years and years to come.
Of course I do realize that for some families just the ability to go on a family vacation is magic. I guess I just want to be sure people are aware that the potential exists for much more if they so desire.
Our trip was just amazing and extra extra special for Matty. I truly wish the same for all of you and your children.
Pamela
Matty's Wish Trip PTR http://www.disboards.com/showthread.php?t=2325607
Matty's Wish Trip TR "Mom, Dad, 3 kids, and a Gingerbread Boy" http://www.disboards.com/showthread.php?t=2356739