My baby has a chromosonal defect? She's HERE & HEALTHY! Post 355!!!

[TLSnell1981]

He said all special needs children are here for us, not us for them...
I thought that was beautiful.
My whole outlook is still prepared for dealing with some sort of abnormality, I haven't gone off the deep end taking todays good news as THE end all answer. Would I like it to mean everything is fine? Absolutely... but my outlook will NEVER be the same...and I believe I'm already a better person for it.

Any child....special needs or not....will be blessed to have you for a Mom!

 

[DisneyGoddess]

I am so happy things are look so much more positive for you. As your pregnancy progresses and the baby grows, you'll know if you should have an amnio or not. I would demand a level 2 if they don't offer it based on the past test results and let the u/s results guide you on your decision.

I hope only the best for you and my offer stands... if you need anything, just PM.

 

[raysnkaysmom]

Just had to share my dream last night....
It was odd, but made me smile..
I dreamed that my childs defect (daughter actually) was that she had no skin pigmentation... she was albino. But...she was adorable creamy skinned, toe-head hair in ponytails and crystal clear blue eyes (dad n I are both brown n brown)...
Anyways... we took the trip we had planned 6 weeks after her birth (where she is amazingly about 5yrs old...lol) ... and we are at Disney.. and they give us fast passes to the front of every line because they know she can't be out in the sun!!! LOL - Dreams are so weird...

Reminds me of the previous poster who said they friend/family member had a special needs of some sort and has used it to his advantage by going to the front of the lines.. LOL.. Who says they don't know what they are doing?!?!!?

Anyways.. I still have good, positive feelings today
Thanks for letting me share!

 

[Tink & Goofy]

I'm so glad to hear you got some good news! We'll just continue to pray that no matter what happens you and your family will be blessed...but we know that's happened already.

 

[5Slays]

Just had to share my dream last night....
It was odd, but made me smile..
I dreamed that my childs defect (daughter actually) was that she had no skin pigmentation... she was albino. But...she was adorable creamy skinned, toe-head hair in ponytails and crystal clear blue eyes (dad n I are both brown n brown)...
Anyways... we took the trip we had planned 6 weeks after her birth (where she is amazingly about 5yrs old...lol) ... and we are at Disney.. and they give us fast passes to the front of every line because they know she can't be out in the sun!!! LOL - Dreams are so weird...

Reminds me of the previous poster who said they friend/family member had a special needs of some sort and has used it to his advantage by going to the front of the lines.. LOL.. Who says they don't know what they are doing?!?!!?

Anyways.. I still have good, positive feelings today
Thanks for letting me share!

I have been a lurker on this thread since day 1, but I wanted to chime in...be careful about dreams sometimes things happen almost exactly as how you dream. When I was pg with DS #1, I had a dream that he was huge when he was born pretty much walking and talking. Well lo and behold, he was 9lbs and 10oz when he was born...almost walking and talking!

As for the baby, it will be exactly what god intends for your family to have. All babies are perfect all just in their own special way. I will be thinking of you!

 

[raysnkaysmom]

I have been a lurker on this thread since day 1, but I wanted to chime in...be careful about dreams sometimes things happen almost exactly as how you dream. When I was pg with DS #1, I had a dream that he was huge when he was born pretty much walking and talking. Well lo and behold, he was 9lbs and 10oz when he was born...almost walking and talking!

As for the baby, it will be exactly what god intends for your family to have. All babies are perfect all just in their own special way. I will be thinking of you!

oh believe me...if I could control my dreams and choose or make them reality...I would!!
I will be grateful for the baby I am able to carry to term

 

[TLSnell1981]

Just had to share my dream last night....


Reminds me of the previous poster who said they friend/family member had a special needs of some sort and has used it to his advantage by going to the front of the lines.. LOL.. Who says they don't know what they are doing?!?!!?

Anyways.. I still have good, positive feelings today
Thanks for letting me share!

It was probably me....with the down syndrome brother that...a...uses his "disability" to his advantage.

I've hesitated to say this but,... My mother didn't have the option for tests when my brother was born....she was 27 yrs old. She had a "feeling" that things weren't quite right....not the same as when she carried me or my middle brother. I mentioned earlier....that I'd had an amnio. It said everything was normal. I had a "feeling" I would never hold my daughter. She was perfect but, stillborn. I think sometimes....we Moms...just know. I can't explain it. Obviously, you feel something isn't quite normal but,....you sense it's all going to be okay. Keep positive. Your baby is lucky to have you for a Mom.

 

[raysnkaysmom]

It was probably me....with the down syndrome brother that...a...uses his "disability" to his advantage.

I've hesitated to say this but,... My mother didn't have the option for tests when my brother was born....she was 27 yrs old. She had a "feeling" that things weren't quite right....not the same as when she carried me or my middle brother. I mentioned earlier....that I'd had an amnio. It said everything was normal. I had a "feeling" I would never hold my daughter. She was perfect but, stillborn. I think sometimes....we Moms...just know. I can't explain it. Obviously, you feel something isn't quite normal but,....you sense it's all going to be okay. Keep positive. Your baby is lucky to have you for a Mom.

yeah....I've felt something wasn't right from the beginning with this one... I have a thread out there that asks if other pregnant moms have felt this. Its definitely a 6th sense of sorts... But...now that I know this baby may (key word, MAY) not be as healthy or have the same number of chromosones as my other 3 chidren, this baby was meant to be mine.

 

[mytwotinks]

It was probably me....with the down syndrome brother that...a...uses his "disability" to his advantage.

I've hesitated to say this but,... My mother didn't have the option for tests when my brother was born....she was 27 yrs old. She had a "feeling" that things weren't quite right....not the same as when she carried me or my middle brother. I mentioned earlier....that I'd had an amnio. It said everything was normal. I had a "feeling" I would never hold my daughter. She was perfect but, stillborn. I think sometimes....we Moms...just know. I can't explain it. Obviously, you feel something isn't quite normal but,....you sense it's all going to be okay. Keep positive. Your baby is lucky to have you for a Mom.

I had that feeling with my first. I remember being in my sister's kitchen when I was pregnant and asking her if she worried a lot when she was pregnant. I told her that I could not stop worrying. She said that she didn't worry because there aren't any "things" that run in our family and all of the babies are born healthy. I just still couldn't stop worrying.

At 34 weeks we went in for a sonogram because I knew that the baby was breech (I thought that the feet were going to be hanging out every time I went to the bathroom! It hurt!!!) and the sonogram tech said, "o.k. now I'm just going to get a doctor to read these. I knew. I didn't say anything to my husband, but I just knew. They don't read your sonogram right then. I don't think my husband had a clue, but I was sitting there trying to act like everything was o.k. even though I knew that we were just about to get some really scary news.

I know that I've said it before, but the scariest time for us was not knowing. That includes the times when we were faced with some pretty bleak facts. The fear of the unknown is huge! I really respect you for being so brave and putting so much thought into the decisions that you are making right now. It's tough, but you do get through it and you are a stronger person on the other side.

 

[raysnkaysmom]

Just wanted to update ...I went to my regular doctor yesterday, but she basically told me that they will leave the ultrasounds up to my specialist. They did use the doppler to check the heartbeat...and still goin good at 155.
The only part that bothered me about the visit, was being asked... YET AGAIN, "What are your plans?"... I'm sick of that question. Maybe I mistook the question, but my first knee-jerk response was, "Well, we aren't terminating first off"... She said... ok, and are you going to have the amnio then? I told her I did have an appt for it, but was still uncertain, pending the outcome of the level 2 ultrasound prior... She asked if I was told all my numbers and results... and I said "Yes"... ugh..

DBF and I talked more tonight...and I am 98% sure I will get the amnio...even if the fluid on the neck still looks reduced. The limbo of not knowing is rough, and even if the fluid went back to norm, if I got my hopes up of a 'normal' pregnancy/child and something IS wrong, I'd be flipped... so, I think we just are on the 'need to know' basis...
So, thats' still the 22nd.

Thanks...I'll update then

 

[java]

Is dh going with you to the level 2 ultrasound? Remember I said my appointment was rough in that they wouldn't tell me anything and turned the screen around the entire time. And they clicked away taking measurements. Then they sent me home!!!! They wanted to send the results to my doctor to discuss them with me. Try to find out if you can get the results ASAP - if the sono place will tell you or if you can have them faxed over to your doctor so you can get there to get the results.

I am sorry about that "What are your plans ?" I got that too. Doctors are worst case scenario people. They don't want to get sued so they are explaining what worst possible is. It wasn't until I went to an older doctor that didn't care about being sued - that I was told everything was good. He was willing to say in all his years practicing he had never gotten a clear 3-d ultrasound and then had a problem. I am hoping the very same for you!

 

[raysnkaysmom]

Is dh going with you to the level 2 ultrasound? Remember I said my appointment was rough in that they wouldn't tell me anything and turned the screen around the entire time. And they clicked away taking measurements. Then they sent me home!!!! They wanted to send the results to my doctor to discuss them with me. Try to find out if you can get the results ASAP - if the sono place will tell you or if you can have them faxed over to your doctor so you can get there to get the results.

I am sorry about that "What are your plans ?" I got that too. Doctors are worst case scenario people. They don't want to get sued so they are explaining what worst possible is. It wasn't until I went to an older doctor that didn't care about being sued - that I was told everything was good. He was willing to say in all his years practicing he had never gotten a clear 3-d ultrasound and then had a problem. I am hoping the very same for you!

oh yeah DBF will go with me!! Since he wasn't at the first one where I found out something was wrong...I dont think he'll ever miss another one again! When I went to the last level 2 (didnt know it was a level 2 at the time..just learned that) they discussed everythign with me...so hopefully they do again. This practice is just great...

 

[java]

oh yeah DBF will go with me!! Since he wasn't at the first one where I found out something was wrong...I dont think he'll ever miss another one again! When I went to the last level 2 (didnt know it was a level 2 at the time..just learned that) they discussed everythign with me...so hopefully they do again. This practice is just great...

sorry I knew dbf and posted dh like a moron. I have not had my coffee yet. I'm glad you like your practice and they are open!

 

[kellig]

Tracy-Just wanted to let you know that you and your family are in my prayers. I know this has to be a tough time, just with all the questions and decisions.

 

[CJBaby]

Praying for a great outcome!

 

[DisneyBride'03]

Thank you for taking the time to update us
You are doing great!!!

I wish the Dr could have phrased "What are your plans?"...just a bit different
But I guess they have to make sure you are educated with every possible option....imagine some patients with outcomes they didnt want...and go back and blame the Dr's for not telling them everything...who knows!

The important thing is YOUR health, mental and physical Again, the amnio is your choice....and that question, what will you do with those results?....
Oh, I feel for you having been throught this!

Lots of prayers from all of us In my situation, throw all the science stuff out the window and pray

 

[Nik's Mom]

oh yeah DBF will go with me!! Since he wasn't at the first one where I found out something was wrong...I dont think he'll ever miss another one again! When I went to the last level 2 (didnt know it was a level 2 at the time..just learned that) they discussed everythign with me...so hopefully they do again. This practice is just great...

Thanks for keeping us updated. I'm going to give the doctor the benefit of a doubt and say that she did not mean any harm when asking what you want to do. It is probably protocol that they must follow. Continue to be strong. I'm glad that your dbf will be there able to go with you to these appointments. It's good to have a 2nd set of ears. Can I suggest that you write down all questions on a notebook and have him jot down the answers when the doctor gives them to you? Sometimes it's hard to remember everything that the doctor says.

I will continue to pray for you.

 

[Hollyster2]

Wishing you the best and thank you for the update! I like your countdown ticker too. Hang in there know that you are a wonderful mother already.

 

[raysnkaysmom]

One of the guys on our board of directors (Mile High Down Syndrome association www.mhdsa.org) has Down syndrome. When he goes out and advocates, he tells everybody not to feel sorry for him nor call him disabled, his life is fine, thank you very much

I just wanted to thank you for posting this webpage... I just now had a chance to go to it... and I've spent over an hr there... It's wonderful and beautiful and uplifting....
These stories were my favorites..

http://www.mhdsa.org/InspirationCordero.htm


http://www.mhdsa.org/InspirationMcClain.htm

http://www.mhdsa.org/InspirationPenfield.htm <~awesome one...

http://www.mhdsa.org/InspirationWalsh.htm


http://www.mhdsa.org/InspirationZareck.htm

Thank you

 

[goofy!]

I just wanted to thank you for posting this webpage... I just now had a chance to go to it... and I've spent over an hr there... It's wonderful and beautiful and uplifting....
These stories were my favorites..

http://www.mhdsa.org/InspirationCordero.htm


http://www.mhdsa.org/InspirationMcClain.htm

http://www.mhdsa.org/InspirationPenfield.htm <~awesome one...

http://www.mhdsa.org/InspirationWalsh.htm


http://www.mhdsa.org/InspirationZareck.htm

Thank you

There are some great stories there. I have had the privilege of meeting many of those children and they are as wonderful as their parents write about.

I am glad you have had some better news recently and hope your ultrasound goes well. But you have a great attitude and are going to be a fantastic parent no matter the outcome. You have such a wonderful glass is half full outlook on life!

PM me if you ever have any questions!

And keep us updated!