kimblebee
now my thoughts will be worth 5 cents
- Joined
- May 28, 2009
You know ‘they’ say that when it rains, it pours? My life has some showers right now that May turn into a typhoon in a month.
I know this thread is supposed to be for Richard so I’ll start there..
He’s doing really, really well, all things considered. He is able to get from his bed into his wheelchair on his own and has started doing some arm strengthening in pt already. He’ll be ready to go home next week, But can stay where he is until I find housing. There are a few places, but having to come up with another damage deposit and first months rent will be a strain, especially this time of year. His surgery scars are healing nicely and there’s no sign of infection at all. The nurses also say it’s a great sign that he can feel pain, means there’s no nerve damage. Phantom pain is challenging right now, but should fade over time.
As for me..
Part of follow up for my ms treatment I did last year is having monthly blood work. They check for certain things because of issues others have had. In October a health warning went out because a high number of people who had had the same treatment were also developing liver issues. So, I had bloodwork done on Wednesday and called my nurse on Thursday to get the results...
Turns out my liver numbers are more than twice what they should be. They were last tested in early 2017 and they were fine. I have to wait a month before I can test again which is going to make for the longest month ever. If my numbers are still high, I will be sent to a liver dr to see if I’ve developed autoimmune hepatitis. It’s when my immune system is attacking my liver as a foreign body. I don’t think it’s fatal, but late stages can require a liver transplant.
Guys..what the heck?? I haven’t had any ms symptoms since my treatments but if this pans out, this will be the second serious side effect I’ve developed. I guess there’s pros and cons to everything but if I would have known I’d develop a rapid heart rate and could potentially require a freakin’ liver transplant, I would have given it a LOT more thought.
The only really important pro right now is that it caught my cervical cancer really early.
I think that news, in addition to everything else pushed me over the edge last night. I spent most of the night throwing up and just feeling really, really poorly.
I finally felt well enough to stop sleeping on the couch by the bathroom about 630 am so I went to bed and fell into a deep deep sleep until 3 pm. I couldn’t tell you the last time I slept so soundly. I woke up feeling clearheaded and like I am now strong enough to make a plan. I don’t feel like I’m in a haze any more.
Before I got sick last night I would randomly burst into tears so I had a feeling my dam
Would be breaking, and did it ever.
I might go up to the hospital or I might start making my 50 lists that I like to have at all times.
Things aren’t perfect, but they’re looking up.
I’ll take it.
I know this thread is supposed to be for Richard so I’ll start there..
He’s doing really, really well, all things considered. He is able to get from his bed into his wheelchair on his own and has started doing some arm strengthening in pt already. He’ll be ready to go home next week, But can stay where he is until I find housing. There are a few places, but having to come up with another damage deposit and first months rent will be a strain, especially this time of year. His surgery scars are healing nicely and there’s no sign of infection at all. The nurses also say it’s a great sign that he can feel pain, means there’s no nerve damage. Phantom pain is challenging right now, but should fade over time.
As for me..
Part of follow up for my ms treatment I did last year is having monthly blood work. They check for certain things because of issues others have had. In October a health warning went out because a high number of people who had had the same treatment were also developing liver issues. So, I had bloodwork done on Wednesday and called my nurse on Thursday to get the results...
Turns out my liver numbers are more than twice what they should be. They were last tested in early 2017 and they were fine. I have to wait a month before I can test again which is going to make for the longest month ever. If my numbers are still high, I will be sent to a liver dr to see if I’ve developed autoimmune hepatitis. It’s when my immune system is attacking my liver as a foreign body. I don’t think it’s fatal, but late stages can require a liver transplant.
Guys..what the heck?? I haven’t had any ms symptoms since my treatments but if this pans out, this will be the second serious side effect I’ve developed. I guess there’s pros and cons to everything but if I would have known I’d develop a rapid heart rate and could potentially require a freakin’ liver transplant, I would have given it a LOT more thought.
The only really important pro right now is that it caught my cervical cancer really early.
I think that news, in addition to everything else pushed me over the edge last night. I spent most of the night throwing up and just feeling really, really poorly.
I finally felt well enough to stop sleeping on the couch by the bathroom about 630 am so I went to bed and fell into a deep deep sleep until 3 pm. I couldn’t tell you the last time I slept so soundly. I woke up feeling clearheaded and like I am now strong enough to make a plan. I don’t feel like I’m in a haze any more.
Before I got sick last night I would randomly burst into tears so I had a feeling my dam
Would be breaking, and did it ever.
I might go up to the hospital or I might start making my 50 lists that I like to have at all times.
Things aren’t perfect, but they’re looking up.
I’ll take it.