It has been a while since I've posted. We are here right now, staying at the Bay Lake Towers which is part of the contemporary. When I was first dx'd many things simply sucked the like out of me. I was on Copaxone and it did little for me. We live in the Houston area, so I knew to expect the same types of symptoms from heat and humidity. We did one trip in late June and I said never again. Many years have passed and I am on Tysabri now. My symptoms are decreased and less intense. I also have 13 years of ms experience under my belt. A couple of thoughts that may be here, but I'm seeing a lot of
ecv suggestions mostly:
1. If your doc is an MS specialist, tell him your therapy isn't working anymore and change it. This can change your whole life, I promise. Or get a new doc that is a specialist.
2. Cooling vests are heavy. There are the kinds with ice packs and the evaporative type. It is freaking humid in Orlando in the summer and evaporative vests are not as effective in humidity. I have both types of vests and have used both at DW. I no longer do this. I have a misting fan and a chilly pad.
3. Do not come to Florida in the summer if you have intense heat sensitivity. You may also have humidity sensitivity (sort of). I can deal with dry heat better than humid heat.
4. Find a way to excercise in a group before your trip. I joined the Y 2 months ago and have been working out 4 days a week for 2 hrs a day. I am doing better on this trip than my DH! I attribute this to working out.
5. Since you have not been to Disney you will need to research each place you are going ahead of time to find little pockets of A/C and a quite place to sit out of the sun. Make sure your family knows that you may have to stop in a shop just to soak up the A/C. Always have water in a bottle and drink it.
6. Schedule non- park days. Sleep in. Spend more time at night during night time EMH than during a warm day in a park. Take several pairs of shoes.
7. Stop at guest services your first day and get a disability services thingy placed on your magic band (will be for everyone) if you are going at a warm/hot time of the year. Since we are here in June, I have done this and used it yesterday during the day at Magic Kingdom. I will use it today at animal kingdom.
8. Feel free to ask anyone that has Disney MS experience by private message including me.