Haybuggsmom
Mouseketeer
- Joined
- Jul 20, 2010
I have spend the morning reading some of the stories of the Wish trips your children have taken looking to prepare for my Haylee's trip.
We have been blessed to have been accepted for our trip through the Toby's Dream Foundation in Va Beach.
Here is a bit about our family.
I am Renea and I am married to Neal who is in the Army. He is currently in Kuait for his 4th tour.
I have 4 wonderful children. Jonathan is 20. I don't know how we would do it without him. He is my "heavy lifter" Haylee is pretty heavy. Then there is Amber she is 17 and she is starting nursing classes in the fall so you can imagine how big of a help she is. My precious Dustyn passed in 1997 due to prematurity.
Then there is Miss Haylee she is 12. She was born at 1lb 11oz (at 26 weeks) She had a terrible start. At one month she went into septic shock (thought to have stemed from a line in her arm) Her body shut down causing a long period of low oxygenation. This caused her to have severe brain damage. She finally came home form the NICU at 5 months old. There was never much expected of her due to her brain damage. But they had not met her yet. She has never walked, talked or eaten on her own but her motivation is incredible. Her doctors were shocked as she learned to clap, rollover and sit up.For 8 years she was on no mediactions but was diagnosed with oral aversion, cortical blindness and CP. At the age of 8 she was diagnosed with epilepsy. Since that day life has gotten harder as we try to control her seizures as best we can.
Thanks to her Neurologist and Toby's Dream we are now just awaiting our dates for her trip. She loves the colors of the Disney movies and loves riding what she can at Busch Gardens so we thought what a better place for our princess to go.
Any suggestions or tips will be greatly appreciated!
Thanks!
Renea
We have been blessed to have been accepted for our trip through the Toby's Dream Foundation in Va Beach.
Here is a bit about our family.
I am Renea and I am married to Neal who is in the Army. He is currently in Kuait for his 4th tour.
I have 4 wonderful children. Jonathan is 20. I don't know how we would do it without him. He is my "heavy lifter" Haylee is pretty heavy. Then there is Amber she is 17 and she is starting nursing classes in the fall so you can imagine how big of a help she is. My precious Dustyn passed in 1997 due to prematurity.
Then there is Miss Haylee she is 12. She was born at 1lb 11oz (at 26 weeks) She had a terrible start. At one month she went into septic shock (thought to have stemed from a line in her arm) Her body shut down causing a long period of low oxygenation. This caused her to have severe brain damage. She finally came home form the NICU at 5 months old. There was never much expected of her due to her brain damage. But they had not met her yet. She has never walked, talked or eaten on her own but her motivation is incredible. Her doctors were shocked as she learned to clap, rollover and sit up.For 8 years she was on no mediactions but was diagnosed with oral aversion, cortical blindness and CP. At the age of 8 she was diagnosed with epilepsy. Since that day life has gotten harder as we try to control her seizures as best we can.
Thanks to her Neurologist and Toby's Dream we are now just awaiting our dates for her trip. She loves the colors of the Disney movies and loves riding what she can at Busch Gardens so we thought what a better place for our princess to go.
Any suggestions or tips will be greatly appreciated!
Thanks!
Renea
We take Phoebe everywhere any other kid would go also. I sometimes wonder why I don't see more kids with disabilities out and about. Haylee sounds very much like Phoebe. She CP and PVL (brain damage) and at almost 9 yrs old she is still trying to learn to walk, feed herself, communicate, etc. But she is very motivated so I have hope that she has more skills to show us down the road. Thanks for sharing your family with us!
