Hi, I am Deb Mom to Molly age 10 and Kristie age 13. Molly is the wish child. She has had many wierd but not life threatening diseases in her life until this March when she was diagnosed with a rare form of kidney disease- ANCA negative, Pauci Immune, cresentic necrotic glomerulonephritis! we call it the PIG (pauci immune glomerulonephritis). This is the rarest form of this very rare kidney disease. Not a whole lot is known about it. you can get it into remission but it will come back with a vengance. The doctors never say if, they say WHEN. WHEN her kidneys fail, WHEN she goes on dialysis, WHEN she needs a transplant. They cant predict in any way if we are talking her kidneys tanking this year or in ten years. But our nephrologist wanted her to go on her wish trip now. When she gets really sick its going to be fast. we wont be able to go while on dialysis, on the transplant list or for at least six months post transplant. A lot of prayers and lots of advice later I decided to go with no regrets and we started our make a wish journey.
Molly intially could not decide between swimming with the dolphins or going to Walt disney World. When we found the dolphin trip would be five days vs 7 days she chose WDW. For a variety of reasons we had to sell our camping trailer and was able to set aside a chunk of the money to pay for discovery cove. So she gets both wishes!
M was pretty depressed before MAW came on the scene. she has had to take massive doses of steroids and a chemo drug. The steroids made her gain weight and get a very puffy face alon with severe hypertention. The combo of the two drugs make her very immune supressed so every fever means a trip to the emergency room for a "fever party"
I am hoping lots of disney and dolphin souvineers and an awesome photo book will be enough to keep the memories and sense of hope alive for her through the struggles ahead.
Molly intially could not decide between swimming with the dolphins or going to Walt disney World. When we found the dolphin trip would be five days vs 7 days she chose WDW. For a variety of reasons we had to sell our camping trailer and was able to set aside a chunk of the money to pay for discovery cove. So she gets both wishes!
M was pretty depressed before MAW came on the scene. she has had to take massive doses of steroids and a chemo drug. The steroids made her gain weight and get a very puffy face alon with severe hypertention. The combo of the two drugs make her very immune supressed so every fever means a trip to the emergency room for a "fever party"
I am hoping lots of disney and dolphin souvineers and an awesome photo book will be enough to keep the memories and sense of hope alive for her through the struggles ahead.
--but wanted to pop in and introduce myself. I have a lot of family in Minnesota, and my parents lived in Shorewood while I was in college. I spent summers there--worked at Byerly's in Edina and Target near Ridgedale. My mom grew up in Darwin--the town with the largest ball of twine made by one man.
It's kind of between Litchfield and Hutchinson, if you know any of those places. We live in the DC area now, but we'll be in MN next year for a family reunion. 
And it's awesome that you get to do Discovery Cove also--I know my kiddos would love that! 
I hope you are having fun with the planning. Do you have any special dining reservations planned?
