Hi,
I HAVE been through this and in nice words it stinks!
My son was in the hospital for having a breathing and swallowing problem. The doctors decided to take a routine cat scan to see if the things they did were ok. I should have known when they did not want to talk in front of him that something was up. I was pulled into a separate room and told that they found a mass in his chest and could be cancer....
I don't remember much as the room started spinning and doctors words became dull and blurred. I felt like I could not breathe and wanted out so bad. I could not go back in his room. I stumbled out of the hospital across the parking lot to the edge of the woods and remember grabbing a tree as i felt like I was going to faint or be sick. I held on that tree and just cried and cried saying not my baby not him.
I knew I had to get it together and make calls and go back in to see him. By the way he is my youngest and was 13 at the time.
You feel like your feet have been cut off and everything in you is draining out. Everything is spinning nothing makes sense.
The hardest part for me was all the waiting. He had to come home wait a week schedule a biopsy. Waiting 7-10 days for the result was BRUTAL. I kept saying in today's modern medicine why so long. I wanted him fixed now! I wanted to rip that tumor out of his chest!
My worst fears came true and he was diagnosed with Hodgkin's Lymphoma. I decided I could either fall a part or grab the bull by the horn and face it down. I was scared but I grabbed that bull.
Here a few things that I learned that was helpful.
Get off the internet. I bet you have googled and looked up everything under the sun. There is a lot of scary stuff out there if you do not have an exact diagnosis. My good friend here Laurabearz got me off the searching. She made me see that I was scaring my self and to save the research until I knew what I needed to research. Wise words from her.
When you go to see the doctor try to have a person with you that is not a parent of the child. Someone like a friend who can keep a level head and listen to what the doctor says as it will all be a blur to you. My best friend came and it helped.
Paper and pen are most needed now. Write down everything the doctor tells you. Write down what is being done as things move a long.
I don't know how old your child is but don't be afraid to talk to them. They are in tune to us more then we know and they know so much more then we can imagine.
If it is cancer remember that it is not a death sentence. Modern medicine is so amazing.
One of the hardest things for me was letting go of his care. As a parent you are the one that takes care of your child and makes the decisions but when diagnosed with cancer it all changes. The doctors are in charge and they take over the care. Not easy for me to except.
Realize that there really are not choices. The doctors like you to believe there is but in the end they lay out what has to be done and you go with the flow.
Try to keep positive people around you. Make sure you really like your doctor as it really helps.
You will be thrown so much information at 1 time in regards to many things not just treatment. You will not be able to comprehend it all at once don't try to.
I will not lie-it will not be easy but I knew I had to do it for him.
He has since been through chemotherapy. He is having radiation right now-10 more treatments. The cancer is gone! Life is settling back now. We all breathe a little easier. I leaned a great deal from him. He is an amazing strong young man. I have such respect and admiration for him for what he has gone through and how he has handled it. He is still a happy full of life not bitter kid. He and I will be forever closer from all this.
A wise "Bear" told me once to think of it this way. There is a different path in life now. It is not the path you chose but it is still a path to follow. When I would say I wanted my normal life back she would say that you make a new normal for yourself. She is so right.
I will say prayers and send pixie dust and hope your news turns out good. There are many of us who know exactly how you are feeling and
to you and your family.
Bug and Slinkyman