Hi, I posted a few years back, before I was officially diagnosed. I think about a few weeks after that post, I was officially diagnosed with fibro.bump
going in 2 weeks
Hi, I posted a few years back, before I was officially diagnosed. I think about a few weeks after that post, I was officially diagnosed with fibro.
Here I am two years later, and a lot worse than I was then. However, I still think it is doable. I had about three hot showers per day while at disney. One in the am then one in the afternoon when we got back to the hotel before dinner and one before bed. This one was a long one to relax my muscles. My calf muscles tend to seize up and heat is the only thing that makes them feel better.
I walked very very slowly. I rested in the park when I needed to. In hindsight I should have had an evc. However, like I said, stop when your body tells you to. I went to MVMCP at 7 and left by 11. Did I want to? Nope, could I walk any more? Nope.
Elevated my feet every night. I alternated crocs with flip flops and my running shoes with orthodics in them. They were new, so those hurt if I wore them too long.
I just did nto have days as long as I used to. I also found the ADRs helpful to have a rest as well. And whatever the ADR was that day, that's the park we were at.
I was on rx meds at the time, so Advil has never helped my fibro. Even still I had pain and swelling. I also spent two days in the room with DS just eating food court food from POP and being in bed and watching tv. It sucked, but I was still at Disney.
I also crashed when I came home and was in excrutiating pain for about 4 days. But it was worth it.
Good luck and enjoy your trip.
I bring an umbrella stroller to both carry all my our stuff (drinks, autograph books, ponchos, etc.) and assist me with walking.
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Sit Down ANYWHERE I need to
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This is what helps ME....we all have different needs, but the stroller saves my life despite the scoffs of family (DD is 11.)
Bumping this.
My mom has had Fibro for as long as I can remember. She always said she wanted to go to Disney World. I am taking both my parents to WDW this October. I am hoping I can come up with a good enough plan so that we get to do what the three of us want to, without exhausting my mom. Being the type of person she is, I know she will push herself too hard because she will feel as if she is holding my father and I back. Going to let her know over the next 8 months that it is fine if we need to bring her back to the hotel! Also, I feel like she has too much pride to take advantage of the wheelchair rentals. Anyone have experience with a similar situation? I just really want her to enjoy herself while we are there and not care what anyone thinks if she decides to go with a wheelchair rental.
I asked her if she could walk 8 miles a day, and she did look at me crazy. She is still being stubborn about the ECV/wheelchair suggestions. I am planning on a break during each day of our trip when we can go back to the hotel and rest. It's tough because I want this to be really special for my family. I don't want her to not realize how big WDW actually is and be in pain the whole trip.
The first sentence made me giggle! I agree about the offsite ECV use--I could never make it with fibro without it. Even around the resorts.I am known to push myself & to be mule-headed when it comes to resting when we are at WDW. The one thing I have learned is to bring or rent a ECV (off site) & use it! It allows me to enjoy the day & not burn out so fast. It allows me to keep up with DH & who ever else may be with us. People are 99% kind & helpful to me. Trust me, everyone else at WDW is too busy enjoying their vacations to even give you a second thought. Feel free to ask me anything about traveling with fibro & using a ECV. I have been doing it for years..
I asked her if she could walk 8 miles a day, and she did look at me crazy. She is still being stubborn about the ECV/wheelchair suggestions. I am planning on a break during each day of our trip when we can go back to the hotel and rest. It's tough because I want this to be really special for my family. I don't want her to not realize how big WDW actually is and be in pain the whole trip.