The Mystery Machine
Sunrise at my house. :+)
- Joined
- Jan 4, 2001
I am so sorry you're still dealing with this. Seems like a very unusual case - is that what they're saying?
They don't say things like that because they don't know. There is no database and women walk around with lymphedema and regular doctors do not understand it. The biggest problem is that it is misdiagnosed.
I went to the biggest name in my city, a plastic surgeon on the cutting edge, and he told me I DID NOT have lymphedema. (He mainly deals with Lipedema, which is a genetic). So there you go. Just because my limbs were not LARGE he pushed me away. Would not even examine me. Then the PT I was seeing dumped me. (I have since gotten a new PT).
My plan is to track down a lymphologist MD and go see them. There are only 8 in the USA. This is a brand new field.
I did ask my breast surgeon to WRITE A NOTE to explain it to the doctors I see going forward.
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