ArwenMarie
DIS Veteran
- Joined
- Apr 10, 2013
I hope you all have a wonderful trip together.
Glad I found this thread. I have a question about touring abilities with stage 3 breast and stage 4 bone cancer. My Girlfriend whom I've known since childhood and was in my wedding party has been fighting cancer for 3 years now. She has had lots of ups and downs in that time. Well its back again. I know she is in a lot of pain. She just started hospice and they have not found a good mix for her pain management. They are no longer doing cancer treatment they have told her to enjoy life. What does that mean really? She refused to be given a time table so we don't know. I want to take her to Disney. She has never been financially able to bring her son and I'm starting to get the feeling she may not come out of this. I should have done this sooner but she's young and I really didn't think it was going to come to this. Can anyone tell me what sort of things she can do. She is in a wheelchair but can briefly be up and walking around. I know thrill rides are out. But Pirates, small world, pooh, people mover, buzz and such should be ok right? I have not said anything to her, yet. Do you think she would be cleared to go? Does the starting of hospice mean they feel the end is vary near? I'm so confused and feel awkward inviting her on a trip if she physically cannot go esp. if she really would want to. Any guidance here would be appreciated.
The boards here have been a great distraction from cancer for me recently. It's been a week now that my fiancee hasn't woken up yet from surgery. When she had the brain tumor out during the first surgery, she was in a coma for a month and the doctor kept wanting to pull the plug near the end. Distractions make the time pass more quickly and help keep my mind off the worst.
We've been battling cancer for four years now. The doctor gave a pretty grim prognosis recently but she's outlived their estimates before and aren't adults in their 20's supposed to ignore what their elders say? The irony is that she finished up her latest round of chemo this past Dec. and was diagnosed with a non-cancerous brain tumor during a routine check-up in Feb.
The cancer has been quite tough at times...she has lost a kidney, part of her intestine and stomach, and a rib. Her liver and remaining kidney aren't doing well at all right now. The brain surgery has added a whole new set of challenges though since she lost certain parts of her memory and has had to learn to walk, talk, eat, etc. again. The good part is that she has forgotten how rough the past four years have been!
So, I just wanted to introduce myself. I don't know how frequently I will be back to this thread. We are supposed to be moving in a week. I don't know if that will be happening or not because our move has already been postponed from last month to this month. I do agree with some of the PPs in that it is nice to have a separate thread for our topic. I've actually never gotten involved with other groups during the past few years, but this thread just felt right.
Hi everyone
Thanks for this thread. I'm truly sorry there's a need for it....I'm currently in remission from stage 4 cervical cancer. They did chemo and radiation at the same time, and lots of little surgeries and procedures, then did a huge operation - an complete anterior exenteration and radical hysterectomy. I was in the hospital and rehab center for 4 months after that. I'm grateful to be in remission. It's been a year so far. I haven't regained any stamina, but am in no pain.
I haven't been to Disney since this all started 2 years ago, but have filled many hours planning fantasy trips! Hopefully I'll actually be able to take one on of these days.
All of you are in my prayers,
Ann
I have a feeling I'll need to rent a wheelchair or ECV while I'm there, but I'm hoping not. During my cycle good weeks, I feel pretty good, but the more treatment I have, the more exhausted I get, so we'll see.
Lisa
Checking in. How is everyone? I have a scan on the 8th - please pray, pray, pray!
I now have a wheelchair that's mine for as long as the insurance company pays the rental company. The last time we went to Disney we flew down and rented a wheelchair there. Does anyone have any experience with flying with your own wheelchair? Do most airlines allow it? Is there a fee? Etc, etc.
Thanks.
- Penny