Although sometimes difficult, try to speak directly to the people who will be helping you. You have to get along with them and be able to commicate easily or it will be very frustrating.
Make sure you understand what they’re able to offer and (maybe more importantly) what they are not. If you’re working through a hospital, the palliative care team should be able to offer assistance in making a decision based on what they believe will be needed.
Wishing you and yours peace.