Pea-n-Me
DIS Veteran
- Joined
- Jul 18, 2004
You are a busy lady! Lol at the school visual. My DS came walking in from work the other day with his “class” on his phone! He would’ve been similar to Josh at that age! We had to use harnesses on everything when very young as he never wanted to sit still. I’m not sure how he survived school but he still doesn’t really like to sit still and I had to remind him to “get back to class” the other day!Apologies in advance if I forget to answer any previous questions...I haven't been on much lately...
@lynxstch, lots of prayers for Madalyn! I hope she continues in the right direction and can come home soon! As far as the Big E...yes, they still do the butter sculpture. And we also usually like to walk through the state houses, but the past few years we've not enjoyed them. WAY too many people...all you can do is shuffle along in the stream. Nobody will let you cross over to one side or the other to actually look at the merchandise in the booths. And you're toast if you have a child in a stroller! Last year I had someone who must have thought that the space in front of me was empty, so she shoved her way around me, tried to dart from left to right in front of me, tripped over the stroller wheels, and had to literally leap over Josh in the stroller to avoid falling on him. But we still like all the food, the animals, and last year we enjoyed the "Mutts Gone Nuts" exhibition.
I want purple hair, too (and I'm 46)! My hair is a kind of reddish-purple already, but I'd love to go true purple. My hairdresser has told me that once my hair turns all white, it will be easier to do - right now we'd have to strip all the color first, so it's really easy once you have grey or white hair.
I will! I don't know if you'd be able to send me a request (I'm pretty locked-down...too many requests from people that just want to friend me in order to sell me stuff), but my FB link is...
https://www.facebook.com/liz.h.carr/
I'm mostly a picture-poster, too. Some observations and memes, too, but mostly photos of Josh
No, and we REALLY need to. Our child is 5 now and we know we absolutely must have one. We just have never seemed to get around to it. I think we talk about it 2-3 times per year. All we have is Josh - and my mom says that if anything ever did happen to us, she's taking Josh and "I'm not giving him up to anybody" - and some retirement accounts, all of which Josh is the beneficiary. But it would still be in HIS best interest if we had wills, I know.
So Friday wasn't the best day of distance learning. Josh would NOT sit down and pay attention. He kept pushing the chair pad onto the floor, then standing up and dancing around, stomping on it, etc. I had the teacher "pinned" (so we could see only her), forgetting that our video was still running on her end, and I finally got so mad that I picked Josh up and made him sit down, pushed in the chair, and he got the heavy-death-metal voice from me, "SIT. DOWN. AND. PAY. ATTENTION." Not to mention that he simply does NOT want to do the assignments that the specials teachers send. I'm exhausted by 3 p.m. - and I haven't even done anything!
Saturday morning we had a very early soccer game (9:30). Josh wasn't with it. He just stared at the ball until it rolled by and we yelled to him to kick it. He's learned how to "trash talk" and he keeps pointing at kids on the other team, telling them "You're going down." I don't know where he learned it. He also does this interesting thing with his arms when he runs...all I can see in my mind's eye is George Jefferson. He does a George Jefferson strut. But when he winds up to kick the ball, he does this little dance that is 100% "the Curly Shuffle" from the Three Stooges.
After soccer we stopped around the corner to buy mums and pumpkins. I think we robbed the place...we got 2 mums, a large pumpkin, a smaller one, a small/medium white one (I always paint a Jack Skellington face on a white pumpkin), and 5 gourds for only $31. Then we had to run home, quickly change and head back out to get Josh his flu shot. He whined and cried and complained the whole way there. The doctor's office was doing them outside under a tent in the parking lot - they were out of the car and back in literally 30 seconds. He admitted that it didn't hurt at all!
In the evening we went to his friend's house for another outdoor movie night. This may have been the last one, it was so cold! There was only one other couple there with their twin 4-year-old boys. Josh's friend's 2-year-old sister would NOT stay away from the snack table - she REALLY wanted those Munchkins! She's so cute...she and her big brother look so much alike, they really could be twins if it weren't for the age difference. I love her name, Aberdeen - I know it's from Scotland, but I never thought about it for a child's name. So pretty! We watched The Sandlot, which the boys really liked. Josh is now asking me to buy it on DVD for him.
Today he's at his grandparents' house with DH. I'm trying to take a break.
(Interesting as he thought about careers he knew he did not want one that involved sitting at a desk, which I thought was good that he figured that out about himself early on!)Re the will. If your mother is the person you choose for Josh to be with if something were to happen to you and your husband, then that’s great! The issue would probably be, though, what would happen if something were to happen to her? (And that could be true of any one person at any age.) So it will be good to start to think about who you might choose after her to raise Josh. It’s a tough thing to think about because no one ever wants to think about the worst happening. I just remembered our lawyer cautioned us not to name couples, but individuals, as that can get messy. So we chose one person with a backup as guardians. And as I mentioned before, then a trustee who would tend to our estate who wouldn’t be in conflict with the guardian. It sounds complicated but the lawyer helped simplify it for us. Good topic!
Just got word that one of her cultures from Friday night has started growing again..thankful that only one out of the 2 are now positive, but it sets us back and we have to restart the 48 hours of negative results to come home. Since she has greatly improved overall in her walking/fevers since yesterday, they are postponing the MRI and testing her inflammatory markers at 5. If they have not lowered, we head for the MRI and see if a small procedure is necessary to drain liquid from the infected site. Thankful to have so many prayer warriors on our side
They ended up doing the MRI early, as she developed a low grade fever, and it did not show enough liquid around the infection to be concerned enough about draining it surgically. Her inflammatory markers also dropped 8 points today, so the Dr was very please with that. We will find out if her latest cultures are positive or negative tomorrow evening. Praying to go home Tuesday 
...wish I could've been there but I couldn't get out of work. Because of Covid, she couldn't have visitors while she was there(4 days) and from what she says, she didn't have the greatest hospital experience. Things like just making her pee on the bed(no bed pan) and not having her use the bedside commode. With her brain damage, she doesn't always have the right perspective so its hard to know if what she's saying is true or not. She told my dad she was in a storage closet and not a regular room...of course,
Prayers indeed for all of you, as well!
Madalyn is getting around SO we’ll this morning and can even rotate her hip in a way that caused pain before. She has not needed ibuprofen for around 48 hours now for fever/pain. Her inflammatory markers have lowered to 28, but they want them down under 20 and won’t test them again until tomorrow morning. It was determined today that her culture that had started to grow and turned positive was actually a contaminant growing, so we have had 2 rounds of negative cultures! 
There was also mention of the possibility of coming home with oral antibiotics instead of a PICC line, which would be amazing after all she has been through 
